Heather, SPTCL, the Next Chapter - Hang on to Your Hat!
Posted Jul 10 2008 4:06pm
[To catch up on previous chapters of Heather's story, link here (post #1) and here (post#2.)]
Heather had her first oncology appointment today. She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared. Last week, after my post about her diagnosis of CGD-TCL, cutaneous gamma-delta t-cell lymphoma, she had been contacted by Judy Jones at theCutaneous Lymphoma Foundation, and she was feeling as prepared as she could.
What she was NOT prepared for was what happened!
Her oncologist was happy to tell her that the results of her clonality test had come in and it turns out that no, she does not have cancer. No treatment needed. They will continue to follow her for awhile, but don’t expect the diagnosis will change.
If you’ve readmy story of SPTCL, then you know the clonality test was pivotal in my story, too. In fact, my entire diagnosis was predicated on this clonality test, and like Heather’s — the clonality test proved I did not have cancer.
While Heather was there, the oncologist got back in touch with the lab in California that reviewed the clonality of her lymphatic cells. They reviewed the slides, reviewed the findings, reviewed studies and all agreed that no — Heather has no cancer. She does have some problem some lymphatic cells, but she will not be treated. Instead, she is working on diet and nutrition. She’ll be checked again in four months.
To say Heather and her family — and her co-diagnosed friend Trisha — are euphoric, doesn’t begin to touch it. We’ve not even met in person, but Heather and I will share a bond forever. She lives in Nevada, and I’m supposed to be out that way in October — so we hope to meet.
Mostly I’m thrilled, just thrilled that the system worked the way it should. Heather’s friend Leslie found me and my experience, Heather and I consulted, and two patients worked together to arrive at the right answers for this young mom who only deserves the best.