An End Of the Year Revisit — SPTCL and Misdiagnosis
Posted Dec 29 2008 7:35pm
If you’ve read this blog for awhile, then you know 2008 was the year of SPTCL misdiagnoses.
SPTCL, subcutaneous panniculitis-like T-cell lymphoma, was the rare and deadly lymphoma that kick-started my work as Every Patient’s Advocate. I was told I had it. In fact, I was told by two labs and an oncologist that I had it, and had only a few months to live.
Earlier this year, in May and then July, I was contacted by two others who were dealing with the same diagnosis of SPTCL. Heather contacted me, then Daniel’s mother contacted me (Daniel is a teenager). They had found my work on the web and asked if I could help them get the information they needed.