In yesterday’s digestion of the neurological information I got from Dr. Grill, I forgot to list the Total Unified Parkinson’s Disease Rating Scales numbers for our five visits.
April 20, 2009 26
October 20, 2009 44 (a 69 percent increase meaning worsening mostly due to needing recalibration)
Feb. 18, 2010 36 (an 18% improvement over October, but a 38% worsening since April ’09)
June 14, 2010 33 (an 8% improvement over Feb. ’10)
October 14, 2010 37 (a 12% worsening since June)
Like I said, it’s the success of my DBS and therapy that’s keeping my total UPDRS scores down. They are able to control the motor symptoms that are measured in the UPDRS III. Not doing nearly as well in the UPDRS I and II, which are NOT as well controlled by DBS and levodopa.
My UPDRS I (Mentation, Behavior and Mood) went from 5 to 5 to 6 to 6 to 7 in the same five visits. 16 is the worst.
The UPDRS II () went from 15 to 23 to 24 to 19 to 22 52 being the worst.
Functional Reach is another area I forgot to mention.
According to studies the average functional reach for a man, 41-69 years old, is 14.9 inches, give or take 2.2 inches. For a man 70-87, functional reach is 13.2 inches, give or take 1.6 inches.
April 2009, my functional reach was 8.6 inches on the first try, 9.4 on the second try, although I have to wonder if that’s a clerical error because I was not particularly wobbly in April 2009.
October 2009, 13 inches on the first try, 13.4 on the second try. Within normal limits.
February 2010, 11.8 inches both times. Below the limit for the 41-69 year old, just inside the lower limit for the average 70-87 year old feller.
June 2010 14.5 inches on the first try, 13.3 inches on the second try. Right on the average for my age.
October 2010 11 inches, both tries. Below the norms for 41-69 and 70-87.