Last Thursday Violet had appointment with her Ocularist to add more onto her scleral shell. We pick it up again this Thursday.
Last Friday Violet had hearing test at Children's Hospital to further investigate why her last test at Jim Patrick Audiology was showing mild hearing impairment. Seems that Violet has whats called Eustachian tube dysfunction which is causing her hearing to be impaired, it is pressure in the middle ear. So we have to go back to her ENT for review on 7th April to see what the next step is and if she may need grommets to help with this problem.
Yesterday we were back to the Children's Hospital for Violet to start her casting again. She has to go back on Friday to be re-casted for her next one. Her Physio agreed that Botox hasn't made any difference yet. Hoping she won't have 3-4 weeks of them this time around.
Today she had Botox follow-up and sad to say as yet no improvement in her foot. She definitely has been relieved with the pain to an extent but so frustrating the Botox continues to have nil effect. Her Dr in the Physical Disability Clinic wants to cancel her next Botox which was due for 10th May. She agrees with me that as Botox isn't doing anything there is no point subjecting her to Botox injections if they will not show any results. She feels crunch time has come and on that same day Violet will be reviewed in the Physical Disability Clinic again and we will be discussing when she will be having orthopaedic surgery, starting of course with a referral to an Orthopaedic surgeon.
Here is a recent photo of what her foot looks like these days, it's no wonder she fell over and split her lip yesterday:
Next Tuesday I have my meeting with Violet's Psychologist to give her some background information on her before her Psych assessment.
Following Monday Violet is having her Psych assessment at The Spastic Centre and the next day Dave and I meet with the Dept of Education to discuss Violet's starting school "issues" and dare I say talk funding!