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Posted Aug 29 2010 8:43pm
"Let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us." Hebrews 12:1

I feel like we are doing a lot of running right now and I just pray that we are running toward something good and worthy and not just running for the sake of running. I want to run with the same joy and perseverance that my two sweet boys have on their faces!

I've posted lots of pictures over the summer, and what a fun and memorable summer it was! But it's been a while since I've written down an update on the boys and their progress. In May they completed their second year at a wonderful nearby preschool where they were loved on and had so much fun and so many friends. But this week starts a new chapter as they are starting classes at a different school this year. This wasn't an easy decision, not in the least of which is because it starts much earlier and will take me 25 more minutes to get to (I'm so not a morning person) but I had to put that aside, LOL.

Our OT recommended it as one of the best places for Andrew to get his needs met for his fine motor development. This is also the preschool that I attended and both my siblings as well and it's always been my intention that they would go there. It goes through 1st grade so we will be set to start K in a private small class size environment if we desire (only two years away YIKES!). So we will miss so many of our friends but I know the boys will adjust and love it in their new school as well.

Andrew's botox/casting that was done in the spring was a smashing success and I'd definitely recommend it to other parents of children with CP. Botox alone did not do much for him at all but the casting made so much difference that he was able to skip his August and November Botox sessions and he will not be reevaluated until December! YAY!

Over the summer we added private physical therapy back to his schedule and our physician wanted it done through Texas Children's so we have a standing appt to drive to Houston and back every Wednesday. This has been exhausting on top of all the other things/driving we've had going on but very worth it as Andrew has made so much progress with his jumping and balance and strength. We will continue this weekly therapy indefinitely (too bad I'm not earning mileage for this!) He will also start back up with his pt/ot through the school district soon which I know he'll really benefit from as his fine motor skills continue to be a struggle for him.

I am so looking forward to getting our new school year schedule/routine established this week. On top of preschool and therapies we will continue to do gymnastics. The boys LOVE it and it's been a great way to sneak in some therapy at the same time.

Being a parent often feels like navigating a mine field. Add in a few special medical needs, even very mild ones, and you are constantly wondering if you are doing enough, doing the right thing, but not burning out your child at the same time. I have learned that I am my child's best advocate, I simply don't have a choice not to be, and I'm definitely not perfect at it but I do try very hard. I don't want to let anyone down because things were tough or we became apathetic. Doctors are essential but they don't seek out parents, it's our job to follow through and ask questions and be proactive because no body else is going to.

I'm not super mom and I will never claim to be. My emotions are all over the place right now. I'm tired and I'm frustrated with three year old behavior issues and ongoing challenges in our lives but I'm so thankful that I can rest in the knowledge that God is ultimately the one who controls the outcome to all these things, even though my inclination is not to rest but to just run as fast as I can, and trying to do this on my own strength just leaves me run down.

Lord, please help me to rest when I'm called to rest, in Your promises and faithfulness. And to run when I'm called to run, the race that you've marked out for me. And more than anything please give me the wisdom to know the difference.
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