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In Honor of Julie Werner-Gastroparesis Activist

Posted Feb 10 2009 11:02am

“Down, down, down into the darkness of the grave
Gently they go, the beautiful, the tender, the kind;
Quietly they go, the intelligent, the witty, the brave.
I know. But I do not approve. And I am not resigned.”
Edna St. Vincent Millay
 


I was visiting a favorite blog, Nitners and Beckers, when I came across a post that shook my heart.  It was a Memorial to Julie Werner a young woman in her twenties who died just over a week ago of complications of Gastroparesis. I did not know Julie, but I wish I did.  She was a beautiful young woman who devoted the years since her diagnosis to advocating for awareness of Gastroparesis, and acted as a board member for G-Pact (Gastroparesis Patient Association). 

I write this to honor and continue Julie’s mission, spreading awareness of Gastroparesis (literally paralysis of the stomach which often effects many organs of the digestive tract).  It is not only a challenging disease to live with day in and day out as eating is a constant struggle. Eating is often followed by nausea, vomitting and/or severe pain.  Complications such as malnutrition, dehydration and severe weight loss, as well as the slowing or stopping of motility and function of organs of the digestive tract, make Gastroparesis a life threatening disease.  (Each case of GP is different and can range from mild to severe.)

To read Julie Werner’s story (and to see her beautiful picture) visitNitners and Beckers.  To make a donation in honor of Julie, to further awareness and fund research, or learn more about Gastroparesis visitG-Pact

* I have just learned that Julie had her own site at Caring Bridges.

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