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Gastroparesis-Stop Sen McCain from cutting funding

Posted Mar 05 2010 5:34pm

Petition to Sen McCain not to cut funding for Gastroparesis and other Motility Disorders .

(ME/CFSers this awful disorder is associated with Autonomic Dystunction; Autonomic Dysfunction that is big part of ME/CFS for many of us. It is the probable cause for my having this disorder.)

Gastroparesis (stomach paralysis) is a Motility Disorder of the stomach.   It can cause starvation, dehydration, malnutrition and death.  When the autonomic nerve to the stomach is damaged, the muscles that the nerve controls aren’t able to move food through the stomach to the small intestine as needed in order to digest food.  Consequently eating and drinking normally become difficult and in some cases eating and drinking at all, become impossible.  Daily symptoms include vomiting, nausea and severe pain.

GP effects many young people as it is most often a side effect of type 1 Diabetes.  It also can be a side effect of Autonomic Dysfunction.  In many cases it is Idiopathic (cause unknown).

On March 8th (Monday) Sen McCain is proposing before Congress that funding for Motilitly Disorders including Gastroparesis should be cut by hundreds of thousands of dollars.  Please take a moment to sign the petition at the link at the top of this page, and inform Sen McCain of the seriousness of these conditions and the detriment it will be to patients and their loved ones, if his proposal should pass.  Thank you for taking the time.

* Two years ago my Gastroparesis was so severe I could not eat, sometimes for weeks at a time. Often I struggled to take in liquids.  My GE and I were considering having a feeding tube inserted into my small intestine as the next line of treatment.  If I ate I experienced severe pain and sometimes vomitting.  I learned that starvation not only causes hunger, but severe pain and weakness as well.

Fortunately gall bladder surgery had a big effect on my GP (this is not a normal result of gall bladder surgery for most with GP).  Now, my Gastroparesis is mild and at times worsens. Since having GP, I don’t take feeling full, chewing a bite of food or being able to quench my thirst for granted.

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