Well, Amelia had her first day back to school yesterday. I really wanted to get pics and video to share...but she was not such a happy camper yesterday. Not sure if it was getting up so early (she had been sleeping in until 7:45/8am every morning!) or just the frantic pace it takes to get her up, dressed, respiratory therapy done and out the door to drive to school. In any case, NOT HAPPY! I did take some video, but it's pathetic as she is kvetching the whole time!!! Today was much better, so I'll try to take some happy video/pics and post them soon!
Nestor and I are really excited for this year because Amelia has been placed in a higher functioning kindergarten class. Many of the kids are ambulatory, some are slightly verbal and they are all very engaged. It's so terrific to see her around a bunch of kids who are interactive with their environment. Not necessarily with each other at this point -- but the potential is there!
The other fantastic piece is that Amelia is with her Pre-K teacher, Carolyn again who is just phenomenal!!!! She goes so above and beyond what is expected and that's such a blessing in any classroom setting. Also, the support staff, meaning all the classroom assistants are the same and the biggest thing -- Amelia's healthcare worker, Esther is with her again this year! Amelia is absolutely crazy about Esther and vice versa! Esther works her like no one else! She has high expectations and doesn't take any baloney from Amelia:) Esther treats her like a regular kid and Amelia definitely steps up to the plate when Esther's around. It's great to see.
There's definitely a settling in process though. Amelia's school day is now much longer, from 8:15am to 2:40pm. The glitch is that she still naps, sooooo that's a little hard. She came home yesterday and was wrecked! It was really hard to get Amelia to nap -- but totally necessary because she was in complete meltdown mode. Also, it was so late in the day I was afraid to let her sleep too long, but things were so "fly by the seat of our pants," unfortunately, we did let her sleep too long (about 50 minutes) and she would not go to sleep last night. Nope, not having it! Last night I think she finally conked out around 10:30pm (yikes!). The really cute thing that happened though is that I laid down in her bed with her for awhile trying to soothe her. I had my big pregger belly to her little back and wouldn't you know it? Amelia's little sister, from deep inside me, started kicking Amelia in her back! Obviously, they were little thumps, but so cute! I was just lying there in the dark, holding Amelia while she was settling down, with a huge smile on my face, while my belly was wrestling around with her future big sis! I just kept thinking -- well, here we go! The little one isn't even here yet and she's already instigating!!!! Life's about to get a whole lot more interesting!
P.S. By the way, the MRI went great last week. Thanks to all for your support! We'll be seeing her neurologist at the end of September so we won't really know much until then.