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Crazy whirly life.

Posted Aug 28 2009 8:07pm
I guess an update is in order. So much has happened in the last week. First off, my USB cable to my old camera that I've been using finally pics this post until I can find a new one to upload my pics.
Lets see...well...Kenny got his helmet on Friday...its cute and it does its job (thank goodness that daddy is avinyl graphics sign guywho can customize his helmet to look cool). He cant pull it off because it really is on tight...but not too tight. When he goes to bang his head (with it on) he kinda stops mid "bang" like...wait...I cant hit my head with this on. So its working! YAY! I have to say that I really don't like him wearing it too much because I want him to be able to tell me why he is frustrated not get used to wearing the helmet. Which brings me to my next topic...his PT yesterday was AWESOME!! Yes, he cried a little when he thought I was going to walk away, but I wasn't...I was just getting a ball. Jaime, his therapist, held him, made him look at her and she was signing and talking to him to use his words. So...after a short tantrum and trying to figure out what he wanted...Kenny signed "Mommy" and signed "more" and a different time made a sound similar to "BBBall" and also made a sound like"pppp" for pig...a toy that he was playing with. He was using mostly his right hand to play with toys, but she was making him use his left. Also was working on his rotation of his trunk...reaching and putting in...and finally to end a GREAT therapy session...holding his hips and making him stand and walk to me! Very sloppy...but he did it! I know that it really wasn't a huge step...but these baby steps are so amazing to see. I work with him (and Gina) daily...and to see that for Kenny, it is starting to click with him, just makes my day. With Gina...she is surpassing Kenny with some things...talking, standing without holding on...I want to teach her that its OK to do things ahead of Kenny, because Kenny has to do things at a different pace. I also have to keep telling myself that too. And...with Kenny, I just have to really watch his movements because she (the therapist) says that Kenny is trying to communicate...just in his own way. So I have to be very vigilant as to what he wants...watching his hands for signs. I also have to be very persistent with making him use his words (signs) for those head-banging, temper-tantrums.
I received his speech therapy evaluation report and they are recommending him go to speech 2x a week for 30 min. its a waiting game...AGAIN. we've got PT 2x a week, OT 1-2x a week, and speech 2x a week...on top of his school starting in Sept. which is 2x a week...and specialist/Dr's appts galore...ON TOP OF school starting at the end of Aug. for the 4 older kids, football for Tony, Cheerleading for Taylor and PTU for Tony and I....AM I CRAZY? Yup...just a little! LOL! I have my "BIG CALENDAR" out and ready to start filling in the dates! LOL!!!
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