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Are You a Parent Who Has ME/CFS? or ME/CFS & MCS or Lyme?

Posted Apr 27 2010 9:25am

For  ME/CFS Awareness Day May 12th, I am writing about the effects of growing up with a parent who has ME/CFS (or ME/CFS & MCS).  I hope to bring understanding to what our children experience as they journey through life with a mom or dad with these illnesses which are misunderstood and often stigmatized.  If you are currently raising children or your children are grown but you were ill when they were young,  I’d love to hear from you. If your children would like to share, terrific, as I think they have the most to teach us.

I hope that bringing awareness to our children’s experience, will not only help parents to further understand what their children go through, but will also help those who work with and relate to our kids outside of home- teachers, coaches, aunts and uncles, counselors and faith communities leaders etc…who will be able to provide them with knowledgable support and understanding.

May is also MCS Awareness Month and many who have ME/CFS  also have MCS.  If you have both, please share about what its like to to live with a parent with both.  MCS sure does bring interesting challenges into our children’s lives.

If you or your children (young or all grown-up) would like to share, just leave a comment saying so, and I will email you a questionaire.

Thank you much,   Kerry

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