Today is Violet’s 5 year Shunt Anniversary! Thankfully, another year has passed without the need of a shunt revision. As you all know this is something we do not take lightly.
You only have to read about yet another tragic loss, to see how serious this can be:
To me July 6th is normally a day for celebration for me, as it is my birthday but this day in 2010 it couldn’t have ended on a sadder note. While I was celebrating being alive after all I have been through recently, another little girl I know lost her life to Hydrocephalus...
This young girl’s name was T’keyah...
I met T’keyah’s mum online a few years ago when Violet was born and diagnosed with hydrocephalus.
Those of you that know me or are a fellow hydro parent know how much I am passionate about making people more aware of how serious Hydrocephalus is.
Hydrocephalus is such an awful condition. While shunts are a treatment for hydro, it is by no means a cure. 7 out of 10 shunts placed will require subsequent operations within 10 years and some more frequently.
Over time, shunts become blocked from the brains protein and debris passing through the shunt system, this can cause the shunt system/valve to malfunction. Then there is disconnection and shunt infection.
For myself and I would imagine other parents of Hydro kids, it's daily worry of when their child's next shunt malfunction will happen. For T’keyah this had happened way too many times in her short life.
This further shows the need for more money to be put into researching better management of Hydrocephalus and the Shunt Systems.
T’keyah was only 6 years old and passed away from multiple cardiac arrests as she was in surgery for yet another one of her many shunt revisions.Needless to say her family are devastated and also have the added heartache of trying to explain to her siblings why her sister is no longer with them...certainly no easy task.
My thoughts are with them daily as they somehow try to piece their lives back together after such a massive loss.