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P.Allen Jones

California
P.Allen Jones is writer living in USA. Author of "I Only Cry at Night,living with Sickle Cell Disease." This video describes the title of her book. http://www.youtube.com/embed/UvHLNLhhI8c Sickle Cell Disease affects millions worldwide. Once thought of as an African... Full Bio
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My Purpose - God's Plan - Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain Celebrating the man and his quote that began my journey. Read on »
New Year - New Sickle Cell Education Committment by P.Allen Jones Posted in: Blog Posts in Chronic Pain  Education is Critical  Advocacy is Essential  Ignorance is Unacceptable  See what Sickle Cell Warriors are doing in the USA that got the Pres ... Read on »
American Society of Hematology - Sickle Cell Awareness by P.Allen Jones Posted in: Blog Posts in Chronic Pain The American Society of Hematology had its annual meeting in San Francisco, Ca this past week. Sickle cell disease was on the agenda and Dr. Dubaun gave a ... Read on »
Sickle Cell & Bioethics - What is it? by P.Allen Jones Posted in: Blog Posts in Chronic Pain At the  Johns Hopkins Berman Institute of Bioethics  there is a vision of hope. Specific to Sickle Cell, there is the VISION OF HOPE: INTEGRATION OF PALLIATIVE C ... Read on »
The price of fun - life with sickle cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain I recently attended my twin grand children's 2nd birthday party. I travelled to an area that recently had a rain storm. Though it had past, the chill was still ... Read on »
NHLBI Treatment Guideline for Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain During Sickle Awareness Month people with sickle cell disease got their prayers answered. The National Heart, Lung and Blood Institute (NHLBI) issued the long awaited repor ... Read on »
Health And Human Services Funding For Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain The US Department of Health And Human Services is offering grant funding for Sickle Cell Treatment Demonstration Centers in the United States. HRSA Gra ... Read on »
Helping Children Understand Sickle Cell Disease by P.Allen Jones Posted in: Blog Posts in Chronic Pain One of the saddest things is a child who suffers with a chronic illness who asks...why me?  In time of suffering, they feel alone, sad and angry that they're different.  ... Read on »
Understanding Sickle Cell Pain by P.Allen Jones Posted in: Blog Posts in Chronic Pain Samir K. Ballas, MD  is a professor of medicine and pediatrics at Thomas Jefferson University in Philadelphia and honorary staff member of HEMORIO, the Hematol ... Read on »
Support Students With Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain The Center for Disease Control (CDC) offer tips for parents and care givers of kids with sickle cell. We need everyone on the team; doctors, teachers, and schoo ... Read on »
Sickle Cell Patient Focused Drug Development Meeting by P.Allen Jones Posted in: Blog Posts in Chronic Pain Food and Drug Administration (FDA) Public Meeting Date: February 7, 2014 Time: 10 a.m. to 4 p.m. Location:FDA White Oak Campus 10903 New Hampsh ... Read on »
Sickle Cell Disease & Natural Healing by P.Allen Jones Posted in: Blog Posts in Chronic Pain What do you know about natural or herbal healing?  How can we (people with sickle cell disease) help ourselves with the benefits of herbal remedies?  Mankind has ... Read on »
Sickle Cell Awareness Month - Globally by P.Allen Jones Posted in: Blog Posts in Chronic Pain Global Sickle Cell Awareness September is the best time of year. The weather starts to cool down as the earth moves away from the sun's summer heat. And, it ... Read on »
A Mother’s Love – Selina’s Battle with Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain Whenever I travel to a new city, I look for sickle cell disease advocates in the area. I like to make contact and invite them to events that I’m participating i ... Read on »
A Hero's Sickle Cell Battle - Keone Penn by P.Allen Jones Posted in: Blog Posts in Chronic Pain I always wanted to interview Keone Penn. In 1998, he was the 12 year old boy who was the first to receive an experimental stem cell treatment at Emory University Hospital. ... Read on »
World Sickle Cell Awareness Day - June 19 by P.Allen Jones Posted in: Blog Posts in Chronic Pain    Bringing sickle cell disease awareness and support to the world.        Writer's are telling their story     Children are living longer Sup ... Read on »
Guest Blog - Sickle Cell Disease and Social Security Disability by P.Allen Jones Posted in: Blog Posts in Chronic Pain   From P. Allen Jones: I know the inability to work because of sickle cell disease is nothing to take lightly. One thing we often experience is excessive absen ... Read on »
Sickle Cell Pain And Opioids by P.Allen Jones Posted in: Blog Posts in Chronic Pain There is no way around pain. It will not be ignored and it must be addressed. The issue doctor's deal with is how to treat it. One way is through the use ... Read on »
Fighting ER Misconceptions About Sickle Cell by P.Allen Jones Posted in: Blog Posts in Chronic Pain Based on an article by Beryl Lieff Benderly An all too familiar emergency room experience for people with sickle cell disease is humiliating, scary and pain ... Read on »
Sickle Cell in Costa Rica - Blood Has No Color by P.Allen Jones Posted in: Blog Posts in Chronic Pain   http://www.fundrepa.org/ Translate website from Spanish to English at www.Bing.com/translator The Foundation for Research and Support for People ... Read on »