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Nathan L. Patient Expert

Nags Head, North Carolina
My name is Nathan. My wife, Tricia has Cystic Fibrosis (CF) and had been preparing for a double lung transplant until we discovered we were pregnant. Tricia is the most incredible person I've ever met. She keeps me humble and in love. Gwyneth is our beautiful, new, baby girl, born 15+ weeks... Full Bio
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Six Years by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I'm reminded of it every day, knowing how radically different the past six years could have been without the gift of Tricia's first donor.  Should your family ever come acro ... Read on »
2013 by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The year is officially over. Over the past several days, I've read several updates on Facebook from friends who bemoan how horrible their own 2013 was, and who look forwa ... Read on »
Five Month Update by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's now been five months since Tricia's second transplant!  She continues to remain stable, but has been unable to gain any weight.  She had several appointments yesterday ... Read on »
HOME AT LAST!!! by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We are so excited to tell you that we made it home just three days before the first day of school for our kids!  We are happy beyond words to be back in our house in time fo ... Read on »
Nearly Home! by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We are praying that we receive the news this week that Tricia is free to go home for good.  Her staples and trach are out, her strength and breathing continues to improve, a ... Read on »
August 3 Update by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It's been two months out of the hospital now, and Tricia continues to improve a little bit every day.  She is able to do all everyday tasks for herself now, which is making ... Read on »
Two Month Update by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We're nearly at two month post-transplant, and I am sorry I haven't updated in a while.  With Tricia feeling strong enough to do more for herself, we finally have our little ... Read on »
One Month by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis One month out from transplant today.  Tricia continues to slowly improve.  We are finally beginning to tell that she is definitely getting a little stronger...she is walking ... Read on »
First Clinic Day by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tricia had her first clinic day today post second transplant.  Clinic days typically take all day and consist of blood work, x-ray, breathing tests, blood gas, and a visit w ... Read on »
"Home" Again, "Home" Again, Jiggity Jig by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tricia was discharged around 3pm today.  No chest tubes and only one IV medication every eight hours give her a real sense of freedom.  She is still receiving humidified air ... Read on »
Possible Discharge Saturday by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis If all goes well, Tricia will be discharged tomorrow (Saturday).  She has been walking a mile consistently and has all but the last two small chest tubes pulled.  She is sti ... Read on »
Continued Progress by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis A few updates Tricia was moved to a bigger room a few days ago.  Most of the rooms in the hospital are incredibly small, but four of the rooms on this ward are bigger than ... Read on »
(Update) Clotting by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis 7:42pm - Everything went well.  The surgeon was able to clean her out and says her lungs are looking good.  They were able to reopen a small part of her previous incision.  ... Read on »
Surgery Info and Game Plan by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Here are a few details about the surgery and some info about the game plan, with a few comparisons to her first transplant in 2008. But first, here's something that I tho ... Read on »
Continued Improvement by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tricia is continuing to do incredibly well.  She spent all of yesterday off any kind of supplemental O2, meaning she is breathing completely on her own for the first time si ... Read on »
Fast Track by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The first few days after Tricia's first transplant were rough for her (if you go back and read my several posts from just after her first surgery in April 2008, you can comp ... Read on »
Transplant Success by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Surgery successful. Went as well as possible. Tricia in ICU. Hard part starts now. Please keep praying.  Nate Read on »
TRANSPLANT!!! by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Tricia rolled into the OR around 5pm.  Surgery could take up to 10 hours. Five years ago was 9 hours. Second transplant surgery and recovery is more risky.  Thank you ... Read on »
Transplant Call #2 by Nathan L. Patient Expert Posted in: Blog Posts in Cystic Fibrosis We received another call this morning around 10am. We won't know anything for sure until late afternoon, and I'll be sure to update. Thank you for praying for this donor fam ... Read on »