One of the MS blogs I've been most impressed with is "Healing through Multiple Sclerosis", published by artist Cathy Aten. Cathy's blog documents both the external physical challenges and very personal internal struggles that she must wrestle with as a result of her Primary Progressive Multiple Sclerosis.
On an almost daily basis, Cathy eloquently communicates the almost impossible to verbalize nature of the impact that the disease has on the psyche of those who suffer from it. She writes of both the bad and the good, the horror and the wonder of watching oneself change, and the constant grappling with losing control of one's life and oneself on so many levels.
Cathy recently posted a video in which she discusses her experiences in dealing with her progressively disabling illness. Both intimate and intelligent, I think this brief video is an impactful summation of the psychological labyrinth that this very physical disease demands its sufferers go through. The disease forces us to find a way to navigate through a fearful and ever-changing landscape, all the while trying to hold onto that which defines us.
As Cathy so succinctly puts it, "What all can you take away and still have the essence of a thing?"...