Sorry that things have been so slow around here for the last week or so, but I've been busy preparing to give a live presentation at the Patient Education Day at the Second Annual CCSVI Update Symposium, to be held this coming weekend at the Crowne Plaza Hotel in Times Square, Manhattan ( click here for details ). Dr. Salvatore Sclafani, who is hosting the symposium, asked me to put together a presentation including some of my photographs for an essay on "A Patient's Perspective On CCSVI".
Dr. Sclafani is an innovative CCSVI practitioner as well as an extremely accomplished amateur photographer himself, so I was honored by his asking me to participate. Have no fears (as if), those of you who can't attend the symposium will be able to catch the presentation right here on Wheelchair Kamikaze, as I'll post the photos and words I wrote to accompany them as a series of entries on the blog.
In the meantime, here's an incredibly informative video, recorded this past March at the annual Society for Interventional Radiology meeting in Chicago. A CCSVI Doctors Roundtable Discussion was presented, which included some of the biggest names in CCSVI engaging in a lively talk which covered a broad spectrum of the issues involved with the investigation and treatment of the condition. The Roundtable, sponsored by the CCSVI Alliance (click here ), offers a comprehensive and evenhanded view of many of the hot topics surrounding CCSVI. Hearing the information coming straight from the doctors’ mouths is absolutely invaluable, and the presentation is packed with highly relevant info.
The video is quite long, about one hour and twenty minutes, and was recently edited by yours truly in my capacity as a member of the Alliance's Patient Advisory Board. It is must-see viewing for anybody interested in CCSVI, even if watching the complete presentation requires multiple sittings.
(Note: Those readers who receive this blog by e-mail will need to visit www.wheelchairkamikaze.com to view the video)