Fearful. Yeah I'm fearful because ever since I came out with my MS I have been treated like crap by people who should know better, but don't.
Why do some people with MS not have CCSVI? Who can say CCSVI is not just another symptom some MSers get? Why do some people with CCSVI NOT have MS? Too many unanswered questions for me to make a decision right now. Am I running out of time? Well, in 1990 at my DX, I was told people with MS by and far have a normal life span, minus a few years. I am secondary progressive and haven't had a relapse in 6 years. The progression is slowing pretty good and I am even improving in the last year. So...
So... we all know that MS is different for everybody, but once again this is not a valid arguement to postpone having surgery" IF A PERSON WANTS TO!!" The research suggests the majority with MS do have CCSVI. Some tests did not follow Dr. Zamboni's protocols and that could be why some are showing as not having CCSVI.
Who can say CCSVI isn't just another symptom? You're right however, that's still not a reason to say I should wait for the surgery.
Of course, if you follow my blog, then you know I am not surprised neurologists don't want to refer patients for testing. Nor, am I surprised that this whole idea makes BIG PHARMA sweat injection needles! Both stand to lose a pile of money.
Yeah agree with you there. Which gives me more reasons to support the surgery.
"Another decision. Just another day with MS."
No it's not just another day with MS. So much for solidarity. If you don't want the surgery Diane that is fine .
I am supporitng a class action suit against my government that denies me my rights under the health act
I am not a child, I am an intelligent woman and I think angioplasty might help me.
I am so disappointed in American bloggers who either ignore CCSVI or brush it off. I have already deleted several MS "expert" blogs that push the drug mantra or tell me to do yoga. Why can't you respect those of us who believe in angioplasty and help us get the right to have it done? If you don't want to help kindly shut up and let us get on with it.