For three days now I have been so horribly tired I can't seem to keep my eyes open, think or hardly move. My face tingles and is heavy and my right side is very weak. Sometimes I can't use my arm or leg on that side and my vision is horrible. I have huge blind spots so much so have walked into the wall and given myself a black eye and accidently hit my husband in the face. I also have constant black and white "spots"
I am trying to function and stay awake but the more I try to force it the worse I am feeling and my eyes have started to burn as if someone was putting acid on them.
I have not had this much of an issue in several months, but it seems as if this is getting worse by the day and not better like normal. Sure I can move my right arm again, but the weak and heavy feeling in my entire right side is much worse and the feel that I need to sleep RIGH NOW is not being made better even with all the extra sleep I have been packing in when ever possible.
I just don't know how to make it stop...
I am taking the Provigil which I can't tell if it is helping or not. I dare not skip it for fear I would be un-wakeable :-(
THE FATIGUE SEVERITY SCALE
For each question, choose a number from 1 to 7 that indicates how much you agree with each statement, where 1 indicates strongly disagree and 7 indicates strongly agree.
My motivation is lower when I am fatigued.
Exercise brings on my fatigue.
I am easily fatigued.
Fatigue interferes with my physical functioning.
Fatigue causes frequent problems for me.
My fatigue prevents sustained physical functioning.
Fatigue interferes with my carrying our certain duties and responsibilities.
Fatigue is among my three most disabling symptoms.
Fatigue interferes with my work, family, or social life
Once you fill out the scale the health care provider takes the average score by adding up the numbers and dividing by 9.
A score of 4 or higher generally means that your fatigue is severe.
Your going through what I "affectionately" call Train Wreck Fatigue or TWF. It stinks. The only way to get through it is to listen to your body and sleep when it tells you to. It WILL pass. Have you contacted your Neurologist regarding the new weakness your having? If not, you need to do so ASAP. Hope you feel better soon!
Thanks. I have been here before, it is just hard with a four year old and a six year old. I had to stop the Avonex in October that I had been on for the last two years. It just seems like I would have been starting to kick this by now, but it just keeps hanging on. I have not called my MD yet. Honestly, I hate (HATE) the steroids and I know that is what he will say. I know that is not such a smart thing to say, but it is the truth...