To all my fellowMS'ers!!! I don't even know where to begin with expressing how sorry I am that you have joined the MS world.
First, I'd like to say. I know that there are going to be many times in your life that you will feel alone but you're NOT.
I also would like to say that it is OK to feel the emotions that are going through your head. However, know that these emotions will pass. You will have GOOD days and then you will also have Bad even VERY BAD Days.How you handle this is....You learn to treasure your good days. Helpful Tips and Ideas It is so important to have as much support as possible to make coping with this disease easier for you.
1) Journaling - Keeping a journal does not mean you have to spend hours writing your every moment of the day. Your journal is basically a way to track your symptoms. By tracking your symptoms you may find that there is a pattern to what triggers them. This will help you and your Doctor. It was suggested by another visitor to this site that even using a calendar and making codes for your symptoms. Example F = fatigue, S= spasms, BV = blurred vision
2) Find GOOD Support!!! I can't express this enough. Join a MS Support Group either in your local area or online. It is so important to talk to others with MS because you learn so much about how to handle certain symptoms, research that is going on, and most importantly... You get a lot of Loving and Caring support from people that have experienced what you have going on. I have found a great site it is calledMS WORLD I know there are many other online support groups but this is a great place to start.
3)Another good thing to do is have and carry a medical card with you that has your name, emergency contacts, Your medical conditions. All medicines and amounts you are taking and list how often you take them. (Include your shots). Also list any allergies. Keep one in your wallet, one in your car, and give to your emergency contact person. Besides the obvious reasons, there will be many times you are asked what medications you are on and with the cognitive problems we tend to have...You can whip out that card and give it to them. To the left I did find a free online emergency medical card link.
4) Keep a binder with folders in it and a notebook. Keep one folder for referrals. Another folder for any medical records. Another one for clippings and articles you may find of interest to you. Keep a clear sleeve in it for Receipts of prescriptions and co-pays. And of course your notebook is for questions and answers for your Doctor.
* hint*If writing is a problem add a small recorder. *hint*I found that when I have trouble gripping things, get a very fat pen with a grip. *hint*I also have found that when gripping things is a problem (I have broken many dishes). My Mom went to the store and found me rubber gloves with knubs on the finger tips so it was easier to grip. I believe she went to Menards or Home