I was diagnosed with Multiple Sclerosis in March of 2007. I also have Fibromyalgia and a rare forms of Chron's. When you are first diagnosed with Multiple Sclerosis, you are not given a lot of information. Basically you are told just a few basics and then told or talk to about what type of MS Shots you will be taking. A very big misconception is that, the general public believe you can be treated for MS. When actually there is no cure for MS. The shots are to help protect future permanent damage and some shots also help repair the mylein sheath, that protects your nerves. As for all the symptoms, the Doctor's only can try to give medications to alleviate the symptoms but a lot do not help. Also there are so many symptoms and to different severities.
Over the last few months I have learned about a treatment that has been around since the 80's but hasn't been approved by the FDA. The speculation is that the medication would take so much money away from the Pharmaceutical Companies. There probably are other factors, however, this is the main reason. LOW DOSE NALTREXONE (LDN) has been around since the 1980's and has been proven to be very helpful for many Autoimmune Diseases and other diseases .. It is amazing to me how many autoimmune diseases there are. What is even more amazing is how LDN has improved so many diseases. Autoimmune diseases, Cancer's, even Endometriosis. With all the good things that have been proven from the use of LDN the Government along with the Pharmaceutical Companies and most Doctor's will not prescribe it nor will they push for further testing of this drug. Luckily, LDN can be purchased without a prescription. I do believe that when you have a disease that it is important to work closely with all of your doctor's. There are times that your Doctor's don't seem to look into other alternatives. They will just continue to push more and more drugs to work on the symptoms. I was turned down by my Neurologist to prescribe LDN. I did chose to purchase it and give it a try. I figured that anything is worth a shot. Sometimes I believe that you have to trust your gut instinct and try other therapies if you research and feel strongly about trying something different.
I started LDN almost 2 months ago. I have noticed changes in all three diseases. I have talked to other fellow MS'ers that have had quicker responses due to only having to fight one disease. There are very minimal side effects from LDN. Basically they consist of possibly Vivid Dreams and Trouble Falling asleep. those are the most common side effects. they have also shown that it is safe for children as well as adults.
LDN is made from an opioid blocker. If you chose to try LDN, you can not be on any strong pain killers. Examples.. Vicodin, Morphine, Percocet as the LDN will only work to fight the effects of those drugs. LDN is compatible with most MS medications and treatments. It was believed that LDN could only be used with Copaxone, however Dr. Bernard Bihari ( the founder) has done enough studies showing that LDN was compatible with all the CRAB shots including Tysabri. Again most doctor's will disagree with this. If you think about how much money we spend monthly on all of our medications for our diseases and to know that there is a treatment that over time would eliminate many of the medications. Then you will understand why the FDA won't approve it and why the pharmaceutical companies will not spend time testing it. Sad but True.
In my own opinion, I feel that everyone that is diagnosed with an autoimmune disease along with any of these other diseases. LDN Should be the very first treatment started before being put onto all of the other drugs. In this article, I was not and am not going to get into my use with LDN. I will say that I noticed GREAT changes immediately. I hope to continue to see more changes as time goes on.
We all must remember that there is NO cure for MS. So, LDN, in no way is a cure but comes very close to making you feel as though you are cured. I think the only downfall is that you feel so much better on LDN right away that it feels as though you have regained a bunch of lost years of pain and sickness. There are very quick and fast responses but at the same time there are so many issues inside your brain and body and your cells that are being fixed that you do not always notice a big change everyday. After a few days or at the end of each week you will look back and notice all the changes that occurred that you didn't notice each day.
In my next few blogs, I will give more information on how to take the LDN, when to take the LDN, how to approach your Doctor's to try to get them on board, etc... feel free to send me messages if you have more questions.