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Living with Multiple Sclerosis (MS) is not an option; IT IS A WAY OF LIFE!)

Posted Nov 04 2010 3:48pm

Published on Thu, Nov 4, 2010 by William L. “Bill” Brayer, MS Helping Hands-MSHH

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No one ever asked for an illness or a disability. One day things are fine and the next day your whole world is turned upside down. So many illnesses, such as Multiple Sclerosis (MS), change virtually everything.

Since MS is a debilitating disease with so many symptoms, no known cause or a cure, people with MS are constantly undergoing changes in the way they live.

Who Are the People with Multiple Sclerosis?

They are you, your parents, your children, your brothers and sisters; they are the people down the street; they are that lady or fellow who may walk a little "funny" at the grocery store.

They are the people that you "tsk tsk" over because they might look "too good" to use a handicapped parking space.

They are the folks who may not be able to get to Church every weekend; they are your peers; they are human beings.

They are the faces of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country that does not discriminate by social standing or class or financial or educational background or language or religion.

They are both able to walk unassisted and use canes and walkers and are wheelchair users; they jog and swim and partake in sports; they are housebound, they use scooters; they need respirators.

They are everything in between. They are visually impaired and they are not. They are at every level of physical ability.

Of course, they "look so good" while they are doing it.

They hear that phrase every day of their lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or shame them into doing something of which they may not be capable.

They may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. They are like that.

Some of them are hearing impaired; yet all of them occasionally have people talk louder to them. "HOW ARE YOU D-O-I-N-G??" they'll scream, speaking to them as though they are either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!"

Of course they do. Thank you very much; they are in fact, the very best looking people in the handicapped community. They have secret beauty pageants every year to decide which of their number is the absolute best looking. Billy Crystal emcees, as his character Fernando; "…and you look MAHVELOUS my dear; absolutely M-A-H-V-E-L-O-U-S…"

They are brave. They are fragile. They want to live, and they want to end it all. They look for support and they want to stand-alone. They are Every Person. They are the People with Multiple Sclerosis. They are people, just like you.

- Posted from my iPhone

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