I have had MS for almost 7 years now> I have been fine! once in a while a littel flare up! Now all of a sudden I lost most of my motor skills in my right arm and feel week all over. Will my motors skills come back to me?
I am going to start with asking a few questions first, then give my reasoning.
QUESTIONS: Have you contacted your Neurologist? Is this a NEW symptom or have you had this happen before? How long has this been going on?
Reasoning's: By contacting your Neurologist, they will be able to determine if this is an needing further treatment like steroids. Most importantly it at least gives the Neurologist some notations in your records, to keep up with your progression or pattern. If this is a new symptom and depending on how long it has been going on, that would usually lead the Neurologist to believe that most likely it is an exacerbation.
As for answering your question... That is the problem with Multiple Sclerosis. There is nobody that can give you an absolute answer. With it is very common to have symptoms act up, sometimes and most times, after the flare up comes to an end. They symptoms tend to go away and in most cases everything is recovered or close to fully recovered. Sometimes a flare up can last a few days or months and sometimes longer. I have met people that have woken up blind and stayed that way for almost a year and then the vision came back. However, there are others that all of a sudden lose their vision or ability to walk and it never comes back or fully back. I am not trying to scare you in any way, because in most cases, everything clams back down, when the flare / exacerbation comes to an end. sometimes choosing to have the treatment of Steroids will speed up the process, however, there still is no way of giving an answer of how long and how much will recover.
I know that we all want answers with MS, I think that is the hardest part of having Multiple Sclerosis. There isn't answers, in most cases. I myself, am going through an exacerbation currently. I can't walk and have horrible spasticity. I always try to figure out what the trigger is. That is where my fault is. I have learned they can't tell me how long it will last but I tend to find my self trying to give it a reason, and my Neurologist kind of giggles and explains again...."You have MS, that is your reason, Tara. You need to stop trying to always have to have a reason". Actually, to be honest.. I just heard him say that to me this morning :)
Feel Free to contact me anytime you have a question or need someone to talk, vent, cry, or laugh with.
I am so sorry!!I know how hard that is Physically, Mentally, and Emotionally.
A Little about how it happened for me:
I had to finally give up working almost 2 years ago and it has been the hardest thing to do but at the same time the best decision. I have always been one to be ont the go and love to interact with people at work and other places. I would try to go to work even during my flare ups and of course, couldn't make it through the day. Calling into work became so embarassing. But my life had become more and more a "day to day lifestyle". it wasn't fair to my job or me. Depending on your symptoms, there may be other jobs that you can do but if you are like me at all, it may be time to talk to your Dr's and get Disability. It sure doesn't pay the bills but it helps. Currently, my "Day to Day" life is down to "Hour to Hour" and I am hoping the Dr's can improve this... Ugh! I used to be a Dental Assistant and loved it but the tremors were getting bad. Of course when I left that job, the tremors subsided but now I have a lot of numbness and painful joints and tendons that even holding a pencil is hard some days.
What other symptoms do you have currently? You wrote that you went all this time with a flare up (little) here and there, With lots of hope and time, maybe this will all subside. I think one thing I have found with myself and talking to others, is that the smaller flare ups tend to recover close to 100%, maybe a little less. The bigger, harder, and longer Flare ups tend to recover (Relapsing Remitting) but to a lesser percentage and that is because of any permanent damage that may have been done during that time. When that happens, then it is time to figure out who the "New You/ Me" is and what we are capable of doing.
Are you starting to gain any of the fine motor skills back or has any of the weakness lessened at all, since you first wrote your initial question? During this time, listen to your body. If you need sleep/rest, do it. Everyday, try to do one thing, even if it is the tiniest thing. You may or may not be able to accomplish it or be able to do it for long at all, but then you lay back down and be proud of yourself for what you did do, not what you didn't do because that doesn't matter.
Tell me a little about what you are finding the hardest things to do/accomplish now? I have lots of little tips and tricks up my sleeve that I have learned to help and if I don't have one... Remeber, I have over 1000 MS'ers I can go ask and see what we can do to help you.
I have had MS for 6 years now and like you I had to stop working, I was working three jobs and going to school. When I stoped working I was almost done with all my pre recs for the program I wanted. During this time I would fall down, I would talk like I was drinking, muscle pain, face pain, so tierd I would have to pull my car over and take a nap, it just felt like I was going to die. After I stoped working as a phlebotomist and EKG tech, things began to slow down, school was good! this spring I recieved a letter saying I was excepted into the dental hygienist program, I was on top of the world. This summer I had a major flare up. I couldn't talk and all my motor skills on my right side was gone. I was so scared, but they told me most likely it would come back. I started school three months ago and if I wasn't studying I was sleeping. My pore husband was going everything and my kids had to visit me in bed, agian I felt like I was going to die. My motor skills in my arm is about 85% better, but to go to school for that program, you need to have a 100% control. Now I am back home, so depressed:< I hope after I recover from this complete exhaustion , I can have my life back:> I am on disability but I just wanted more. I have always been that way and still at this age of 40, I feel like I need to be going after somthing. My daughter who is 20 is having a baby in May, I am going to focus on that and my two boys.
Wow, you are going to be a Grandma? That is exciting and yes, I agree, you do get to a point that you realize what is important in life and it is..... You and Your Family!!! That comes FIRST! Then as time goes on if you can do more, then you do... I had to come to that realization about a year ago... It is hard to always remember that. I have down times still that I need a quick reminder of that. It seems like when I am in a flare up that keeps me down for the count or symptoms get triggered and keeps me down, I get down and out if it lasts more than a few days or so. I will get emotional and then I kind of have to get mad at myself and remind myself that MS may knock me down at times and may not allow me to live the life I wish I could... But it is not going to win. It seems like, once I remember that, I can start fighting it a little more.
I am so excited for you about your Grandbaby and how old are your son's? I, like you, have a Daughter that is almost 19 and 2 boys. one is almost 16 and the other is 12.
We have a lot in common! my oldest son turns 14 on oct 31 "halloween baby" and my youngest is 9 1/2 he has to get that 1/2 in lol. I was so worked up tonight I hit the gym, my husban says I am crazy. I can't sit still for long. I am just going to sit back and take life slow, theres nothing wrong with that. Where do you live? I live in a small town Athol Ma 80 miles north of Boston. I am from Boston moed out here when my mom got remarried. I love it out in the woods.
WE have so much in common my olest son will be 14 this month Halloween. My yougest son is 9 he will be 10 in March. I live in a small town athol ma about 80 miles north of Boston. That is where I am from, but I love living out in the woods, it is a good place for kids to grow up. Where are you from and howdoes the weather affect your MS. Every time I go through a change in weather I get ill. I feel better in the cold, but love the sun! I can't wait to be a gramma:)
We have even more in common than that. we even live the same.. We (both my Hubby and I) were raised in a very big and gracy city, about an hour West of Chicago, Illinois. About 8 years ago we moved to a very small town further West. We live in an old farm house surrounded by woods and in the distance the sound of cows mooing.. LOL It was the best change and place for our kids to experience and grow up in. I have always been the on-the-go person, crazy busy, very stressed life. I thought I handled stress very well and thrived on it. If I didn't have enough of my own, I would borrow other people's stress and solve their problems. I didn't know how to live life any differently. Moving out here was very different for me but I loved it. I loved it like a vacation but was still determined to find STRESS... It's not like I didn't see it coming (or at least something being wrong) but eventually I finally slammed into that brick wall. The MS brick wall. I had been having symptoms for about a year and kept brushing it off. Then more and more symptoms were coming and I was so fatigued but the symptoms, to me, sounded like a Dr. would think I was nutty. The burning and prickling sensations, slurring words, cognitive issues, sleeping all the time. I was so busy with work, I didn't want to take the time to go to the Dr's until I finished all the projects I had going. By the time I went to see the Dr. I was sleeping 14-18 hours and had 13 symptoms. That began the journey of MS and I think I realized at that point how important living out here in the country was and that I needed to appreciate it.
I want to say that I am very proud of you for going to the gym and working out. Be very careful, however, being that you are having an exacerbation. You need to reserve some of that energy for recovering. Mostly though, you don't want to over do it and suffer the next day. I would consider talking to your Dr. about Physical Therapy to work on those fine motor skills. The sooner you work on those the better your chances are of recovering anything that you have lost.
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