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I HAVE QUESTIONS ABOUT CCSVI


Posted by paulnsally1

MY NAME IS PAUL DAVIS. I WOULD LIKE TO ADDRESS THIS LETTER TO MARK (WHEELCHAIR KAMIKAZE) IF THIS IS THE PROPER WAY. I TOO HAVE HAD M/S FOR 38 YEARS END I AM 72 YEARS OLD. I AM VERY INTERESTED IN THE CCSVI TREATMENT. I AM IN VERY GOOD HEALTH AND MY ONLY PROBLEM IS I HAVE TO USE A WALKER WHEN I ATTEMPT TO WALK AND THEN IT IS NOT WELL. I SWIM EVERY DAY AND DRIVE AND JUST ABOUT ANYTHING I WANT. I HAVE VERY GOOD LIVING CONDITIONS AND SUPPORT. I WOULD LIKE YOUR OPINION. DO YOU THINK IT MIGHT BE WORTH A TRY. OH, BY THE WAY, I ALSO CAME FROM A SMALL TOWN IN SOUTHERN OHIO THAT I FOUND OUT THIS SUMMER HAS A FEW CITIZENS THAT HAVE M/S. MY BROTHER AND I AND A GIRL OF OUR AGE HAS BEEN DIAGNOSED. SHE LIVED WITHIN I MILE. THANKS, AND I WILL AWAIT YOUR RESPONSE. PAUL DAVIS 574 VERBENIA CT. SATELLITE BEACH, FL 32937
 
Answers (1)
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I speak to over 1000 MS'ers daily and have started a few online support groups as well. I have talked to quite a few MS'ers that have had the CCSVI procedure done (A.K.A LIBERATED). My only thoughts are that you talk to as many MS'ers as you can that have had it done. Including ones that it didnt work for. You need to hear both sides. I have talked to both and after waiting long enough and listening to both sides, I made the choice not to go through with it. It was the decision that was best for me for now. However, after talking to both sides, you may decide it is right for you. Have you talked to your Neuro about it? I know most Neuro's in the United States dont all agree or know much about it. There are many studies being done and that may be somethin g that may be of interest to you as well. I think everyone needs to learn as much as they can and tal?k to both sides of MS'ers that have had it done and make the best decision for you.  I wish you the best of luck and want you to know that I think you are an inspiration to many MS'ers with how active you are and what all you continue to do. 
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