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DE Area MS Chat Follow-up Information

Posted Jan 29 2011 9:34pm
Thanks to the TWELVE chatters who popped in for the Delaware Area on-line MS Chat last Friday. What a busy night! As promised, here is a summary of the resources we discussed, in no particular order.

For people in the Newark, Delaware area -  
Yes U Can Assisted Exercise Program: If you are an adult 18 and older with limited mobility or disability who wants to exercise but need assistance, sign up now to receive one- on- one assistance from student volunteers. Contact the Yes U Can Extension Program via email info@yesucandelaware.com or call 302-286-1399.

Also related to exercise: Get a FREE My MS Yoga DVD at http://www.mymsyoga.com/yoga

"My MS Yoga is a yoga program created especially for those with multiple sclerosis by Baron Baptiste and Dr. Elliot Frohman. My MS Yoga was developed so that you can adapt and modify the exercises based on your needs. If you’re having a bad day, you can modify your program and do something less intensive. On better days, you can challenge yourself to enhance your yoga capabilities."  Please note that this is sponsored by Biogen Idec and Elan Pharmaceuticals.

Speaking of yoga, we discussed meditation as a way to manage pain.
Shinzen Young teaches mindfulness meditation, and has innovative techniques for pain management http://www.shinzen.org/

He offers a number of CDs on his website, including Meditating Through Fatigue and Break Through Pain. Some are available on Amazon.com.

 Another mindfulness blog from Lhasha Tizer (Denver’s mother): http://themindfulnesspath.blogspot.com/

Our official discussion topic was “where do you get reliable information about MS?” and our answers included a wide range of resources, including the following websites:



There are "aggregate sites" which collect latest information from blogs:
    Alltop: http://multiple-sclerosis.alltop.com/ The Daily Reviewer, Top 100 MS Blogs: http://thedailyreviewer.com/top/multiple-sclerosis

The question was raised, "can people with MS drink green tea?" because there is a large amount of antioxidants found in green tea. This led to a discussion of Complimentary and Alternative Medicines (CAM), and frustration over the conflicting information found in books and websites.

Check out this link for one doctor’s opinion from the Swank MS Foundation: 
http://www.swankmsdiet.org/Ask%20the%20Doc

"Antioxidants stimulate the immune system. MS is an autoimmune disease, therefore, it is theoretically possible that increasing immune activity by using antioxidants can stimulate MS disease activity, though most studies show improvements in MS symptoms with the use of antioxidants. Inflammation in general exacerbates MS, thus, if antioxidants reduce free radicals and inflammation, this is a therapeutic treatment that is recommended to MS patients."

This from the Rocky Mountain MS CAM Center: http://www.ms-cam.org/
"Green tea contains polyphenols, which have antioxidant effects, and caffeine (10-50 mg caffeine/cup). In modest doses (up to 250 mg daily), caffeine is usually well tolerated and may improve mental alertness. The urinary irritant and diuretic actions of caffeine may worsen MS-associated bladder difficulties. Also, caffeine may be a risk factor for osteoporosis, a condition to which MS patients may be especially prone."

Books: Complementary and Alternative Medicine and Multiple Sclerosis, by Allen C. Bowling, M.D., PhD. This and many other books by Dr. Bowling such as "Alternative Medicine and Multiple Sclerosis" are available on Amazon.   

Phew!

Next chat  11 Feb 2011

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