For the past 6 months I have been having severe burning pain in my buttocks, hips, thighs going down the side of my legs to my knees and then from my knees down it feels like my legs are going to explode. I have also lost the feeling in the bottom of my feet.
I have also have had a severe headache for about 5 weeks and any light or sunlight makes it worse. I also have started having tunnel, blurred vision 3 or 4 times a week. On a couple of occassions, I have went kind of blank and couldn't say what I was thinking or started talking and what I was trying to say wasn't what came out of my mouth.
My physician feels that I may have spinal meningitis or possibly MS. If we don't get this diagnosed soon, could I have permanent nerve/muscle damage?
I can't set, stand or walk for more than 5 minutes and have a weakness in my legs to the point I need to use a walker or crutches. My most comfortable is lying down flat on my back.
Have done an MRI and just had a CT scan done last week. Also had a Lumbar Laminectomy with fusion and hardware L2 - S1 in Dec 2008.
Any help that you might be able to give would be appreciated, as I am starting to get worried as I'm only 43 years old and was very active up until 6 months ago and I am progressively getting worse each week.
I am sorry that you have to deal with all of this. You said you had an MRI… was it of your brain and do you remember if they used contrast? I brain MRI is a great tool when it comes to diagnosing MS as the lesions or plaques left by the disease are easily picked up by and MRI, but CAN NOT be picked up on by a CT scan.
It sounds to me (and I am not a doctor) that you need an immediate spinal tap and full blood work up. I am not a worried about the MS taking a long time to get a diagnosis (many people have gone 10 or more years before finally getting one) but I do worry about meningitis, which in all honesty has been fatal if left untreated. Now take a deep breath…breathe….good.
I am not trying to scare you, but I think perhaps a sense of urgency may be in order.
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