An MS patient's CCSVI Diagnosis and Treatment Log Entry #9 – 12 Week Update
Posted Jun 08 2010 12:00am
Written by Mitch Sturgeon - June 8, 2010
Everyone wants to know how I’m doing after my CCSVI procedure . The answer is…I feel exactly the same as I did before my visit to Dr. Sclafani. That may sound like bad news, but maybe it is, and maybe it isn’t.
Some people are personally invested in my outcome because they know me and care about me. Others are following my story because I represent another data point in what has become a global, open laboratory experiment. Our collective lab notes can be found at CCSVI websites, on Facebook, Twitter, YouTube, TIMS , and at a place we affectionately call the Blogosphere.
So I sit here and wonder- have the blood flow characteristics in my central nervous system improved enough to alter the course of my MS? Unfortunately, I have no answer today. As soon as I do have a clue, one way or the other, you’ll be the first to know (well, right after I tell Kim).
Before trying to evaluate the success or failure of my CCSVI procedure, I decided to re-read my earlier blog posts, so that I could be reminded of what my expectations were. I’m glad I wrote them down, because expectations are notoriously fluid over time. Here’s some of what I wrote, from the oldest post to the most recent
“…people like me who have already suffered significant damage to our central nervous systems will not see much, if any, improvement in our current conditions. We would simply stop getting worse. I need to stop getting worse, like, yesterday. Getting better can wait.”