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momvocateT18

California
Mom of a child with a genetic condition called Edwards Syndrome or Trisomy 18 (T18)
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Look Who's 5! by momvocateT18 Posted in: Blog Posts in Children's Health Upon her arrival into this world we called Alyssa a "spitfire". In the five years since her birth she has lived up to her nickname. Alyssa celebrated her 5th birthda ... Read on »
 Augu ... by momvocateT18 Posted in: Blog Posts in Children's Health  August 2011 - Prior to surgery to correct scoliosis Keeping little sister at bay...December 2012 December 2012 ... Read on »
Birthday Girl! by momvocateT18 Posted in: Blog Posts in Children's Health You know I wouldn’t miss updating you today. Baby girl is 3!!! Yes, three!!! To think we are here at this point is fantastically unimaginable. Praise the Lord, Alyss ... Read on »
Happy Easter! by momvocateT18 Posted in: Blog Posts in Children's Health HAPPY EASTER!! It certainly been a long winter! Since January Alyssa has been managing and getting over some difficult respiratory concerns. The last being just ... Read on »
Alyssa's first Phillies game ... by momvocateT18 Posted in: Blog Posts in Children's Health Alyssa's first Phillies game! They played the Mets and won!! She loved the noise of the crowd, the lights and watched the Phantic do his stuff. It was a blast. ... Read on »
Happy New Year! by momvocateT18 Posted in: Blog Posts in Children's Health Alyssa wearing her new big girl glasses Okay a late new year greeting, but it is still the dawn of a new year! I can't believe that it's been about 4 months since last ... Read on »
Sad news from Mike and Melanie... by momvocateT18 Posted in: Blog Posts in Children's Health Nearly a year ago Melanie had contacted me when pregnant and desiring encouraging support, as in utero her daughter was diagnoised with Trisomy 18. She and Mike needed HOPE ... Read on »
Alyssa's 5K Key Note Speech by momvocateT18 Posted in: Blog Posts in Children's Health Just wanted to share (better late than never..hopefully) the speech I read at our Alyssa's 5K Trisomy 18 Awareness Event back in July. Alyssa's is doing well, she did have a ... Read on »
Alyssa's 5K went great! by momvocateT18 Posted in: Blog Posts in Children's Health If you'd like to see race day pictures and race finish times from Alyssa's 5K go to alyssasencouragers.vpweb.com The Hope for Alyssa domain is no longer available, so the ... Read on »
HAPPY BIRTHDAY 2nd ALYSSA!! Random Pictures by momvocateT18 Posted in: Blog Posts in Children's Health This is Alyssa at her ENT appointment. Since her ear canals are so stenotic (small), her doctor has not been able to see her ear drum until using this method. Alyssa is stra ... Read on »
One week and counting... by momvocateT18 Posted in: Blog Posts in Children's Health So it's a few days before Alyssa's 2nd birthday! Wow!! I know I've been a little more on edge, and trying not to think about it too much. Yet this really ... Read on »
Alyssa's feeling better and back to her old ways by momvocateT18 Posted in: Blog Posts in Children's Health http://www.hopeforalyssa.com/ Hard to believe it's only two months away. We continue to work hard at organizing and preparing for the run/walk. Really hoping that th ... Read on »
THe common cold isn't so common for Trisomy 18 kids... by momvocateT18 Posted in: Blog Posts in Children's Health Alyssa has been sick with a cold since Friday. It came on quick and quickly affected her lung function and heart rate. Her O2 without supplemental oxygen while awake w ... Read on »
Some random pictures by momvocateT18 Posted in: Blog Posts in Children's Health We are looking forward to the warmer spring/summer days for more visits to the park. Alyssa loved the ducks and the wind on her face. Don't know if she was ... Read on »
Oh and by the way.... by momvocateT18 Posted in: Blog Posts in Children's Health Here's one test I keep on passing : yep that's right... Due: October 2010 So this explains the icky feelings, increasing fatigue, fortgetfulness and a host of o ... Read on »
Quick update by momvocateT18 Posted in: Blog Posts in Children's Health It's been crazy busy here at home between birthday celebrations (our older daughter turned 4!!); sickness including a bout with Scarlet fever my younger son and Alyssa's 5K ... Read on »
Updates by momvocateT18 Posted in: Blog Posts in Children's Health Many of you have inquired about The Ritzman family. Unfortunately I don't have an update for you. The last contact I had with the family, regarding the baby was via a genera ... Read on »
ALYSSA'S 5K LOGO ART CONTEST by momvocateT18 Posted in: Blog Posts in Children's Health ALYSSA'S 5K LOGO ART CONTEST Create an awesome logo and you may be the grand winner whose work will be used for our shirts, banner and/or signs!! ... Read on »
A hearfelt plea from Melanie... by momvocateT18 Posted in: Blog Posts in Children's Health With Melanie's permission I am posting an e-mail she had sent to me this morning. I did not post the family picture however if you'd like to see the Ritzman's and their b ... Read on »