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mkirchhofer

Brookville, Ohio
Hannah is 9 years old and struggles with intractible epilepsy, hypertension, and alveolar hypoventilation syndrome.  She has complex partial and tonic clonic seizures.  We continue to work with genetics to see if she has an underlying syndrome.  I started this blog to keep family... Full Bio
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PURPLE DAY..... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures I wore my purple on PURPLE DAY..... did YOU???? That's not all..... look what I did...... my FIRST (and only) one..... ... Read on »
hard times... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah is really having a hard time titrating with Vimpat.  I am not sure what is going on.  When we initially started it, she started having non stop seizures and seizure ... Read on »
where has the time gone??? by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Wow.  I can't believe it has been a month since I have blogged last.  Time really does fly by!! My baby girl is now an 11 year old young lady.  She had a couple great bir ... Read on »
big day.... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures HAPPY BIRTHDAY HANNAH!!!!!! I am having a hard time with her turning 11.   How can that be possible???  I have really been thinking about the day she was born.  We had ... Read on »
pics... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures MAMA GOT A NEW CAMERA... OH YEAH!!!  So, indulge me, while I practice!!! AWWWW!!!! Such a handsome boy!!!! What a yawn!! This is Hann ... Read on »
definite progress... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures WOW... It's been awhile!!!  We had a fantastic Christmas.  We were able to spend the day together, play with new toys and enjoy each other!! Hannah's seizures continue to ... Read on »
surgery... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Last Wednesday Hannah had surgery on her arm.  What a time we had.  Things didn't go completely like we had planned (but then again... when does it ever???) We arrived at ... Read on »
shifted... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah had rough weekend full of broken arm pain...  I continued to give her pain pills to help take the edge off (she hates taking them because they knock her out).  I wen ... Read on »
Happy Birthday Blitzen!!!!!!!!!!!!!!!!! by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Blitzen turns 4 years old today!!  He is sooo awesome.  We ALL love him so so much... A doggie birthday cookie!!! He couldn't wait!!!  We were singing Ha ... Read on »
it's been awhile... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures It has been very eventful lately... First, let me say, Hannah seems to be in a good spot, seizure wise.  (hate to even say it outloud...)  I think we have found a good medi ... Read on »
spoke too soon... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures UUUGGGHHHH!!!! Well... at least we had some seizure relief.  Hannah just had a seizure where she soaked herself....  Here's hoping it was a fluke?? even though ... Read on »
Still doing well!!! by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah has only had TWO seizures in the last week!!!!!!  WOW!!!!  We are either in a nice "honeymoon" period of just increasing her meds OR we have finally reached a place ... Read on »
Negative.... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures The results are in.... she tested negative for the gene mutation.... I am still not sure how I feel about it.  I was hopeful, REALLY hopeful, to finally have a name... ... Read on »
It's November!!! by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures And that means..... IT'S EPILEPSY AWARENESS MONTH!!!!! So get out your purple and support all the very brave kids who fight the seizure monster ... Read on »
and the verdict is.... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures we don't know yet.... UGH!!! Results are NOT in... They should be there tomorrow or Monday.  So we wait... some more.... Dr Neuro decided to add an aftern ... Read on »
home again... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures We left the hospital on Monday morning....extremely frustrated.  No seizures or wetting whilst at the apparently, too fun to be at, hospital!!!  She still had the same abno ... Read on »
frustrated.... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah has wet her pants almost every day, several times a day, since July....  We get to the hospital, all hooked up to leads, me... very excited to see what these seizure ... Read on »
EMU by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Tomorrow.... off to the hospital we go..... Praying we are able to see what these crazy seizures look like, where they are coming from, how often... you get ... Read on »
~~what a week~~ by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah and I went back to see her neurologist yesterday.  She was totally out of control.  I think we would have ended up in ER if we didn't have an appointment.   We all a ... Read on »
still seizing... by mkirchhofer Posted in: Blog Posts in Epilepsy & Seizures Hannah cannot catch a break from this increase in seizures...  She is having a rough go at night with tonic's and tonic clonics; and a rough time during the day with absenc ... Read on »