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Mindi

As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been... Full Bio
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Someday You'll Need to Hear This by Mindi Posted in: Blog Posts in Children's Health It's late. I cannot sleep. I have not blogged in months. But here I am. I can only conclude that the thoughts racing through my head tonight need to be recorded here. O ... Read on »
Peep by Mindi Posted in: Blog Posts in Children's Health After nine months of speech therapy, we have a peep -- sort of. This will be more of a skimming than a deep dive, but there is progress to report so drum roll pleas ... Read on »
Promises by Mindi Posted in: Blog Posts in Children's Health It's 10:30pm and I just stepped off the treadmill. I promised myself 4 miles today -- a promise I thought I'd lead off the day with at 5:30 this morning. Today, however, li ... Read on »
Orange by Mindi Posted in: Blog Posts in Children's Health These two may not say much, but they know how to enjoy a Friday night. (Mac and his girl Sarah after some pool-time fun on a recent weekend getaway.) Tomorrow n ... Read on »
Waxing Philosophical by Mindi Posted in: Blog Posts in Children's Health "Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work; you don't give up." ... Read on »
The Silent Treatment by Mindi Posted in: Blog Posts in Children's Health Mac and Maui were made for each other. Hey there friends! Yep, still here. Still happy. Still trying to fit it all into the day. Still falling short when it comes ... Read on »
Dream Big by Mindi Posted in: Blog Posts in Children's Health If no news is good news, I guess you can assume we’ve been living a whole lotta good news over here. The last few months have been a breath-holding, too-good- ... Read on »
Totally Two by Mindi Posted in: Blog Posts in Children's Health Mr. Magic turned two last Friday. Before the party, there was a fishy gift or two. "Ish. Ish." It's the only word Mac says with any regularity. Now ... Read on »
Rush for Summer by Mindi Posted in: Blog Posts in Children's Health The Monday after we arrived home from our field trip to Philly, Matt took a deep breath and said, "Look around. It's summer. We almost missed it." It was true. Summer ... Read on »
Looking Forward by Mindi Posted in: Blog Posts in Children's Health Grandma called today. We've apparently gone too long between posts. I apologize. We've been preoccupied; standing in awe of the month that is now behind us. Did I just sa ... Read on »
His Way, All the Way by Mindi Posted in: Blog Posts in Children's Health McKay's xrays and labs this morning were...drum roll please...better. Not completely clear, but improved and good enough to talk the docs into letting us do a follow up on ... Read on »
Paroled by Mindi Posted in: Blog Posts in Children's Health Mac's effusion is unchanged. Through four days of adjusting meds, up-ing doses, back and forth from IV to oral--unchanged. So unchanged, in fact, that they are talking t ... Read on »
Sincere Thanks by Mindi Posted in: Blog Posts in Children's Health Last night my husband returned alone to a quiet, darkened corner of the Ronald McDonald House here in Philadelphia. It's a ritual he practices every night. He waits ... Read on »
Soggy by Mindi Posted in: Blog Posts in Children's Health Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body. ~Elizabeth Stone _________________ ... Read on »
Tube Drama by Mindi Posted in: Blog Posts in Children's Health McKay's chest tube fell out last night. More like wiggled itself nearly out and invited a cardiothoraicic surgeon to finish the job. Regardless, it was extremely frightenin ... Read on »
How Do You Mend a Broken Heart? by Mindi Posted in: Blog Posts in Children's Health Things continue to stay just about the same in the step-down lounge. Still battling effusions. Still some decreased function in the right lung. Still waiting for Mac's ches ... Read on »
Best Thing, Worst Thing by Mindi Posted in: Blog Posts in Children's Health Every night at dinner we play a game with our boys called: Best Thing, Worst Thing. Each of us takes a turn telling the very best of what happened that day and the very w ... Read on »
Patience by Mindi Posted in: Blog Posts in Children's Health McKay managed to turn a challenging morning into a golden afternoon, complete with a visit to the patients-only playroom. ________________________ ... Read on »
90-what?! by Mindi Posted in: Blog Posts in Children's Health Right now, this very minute, Mac's oxygen saturations are at 91 on room air. I know--Get. Out. Of. Town. :) But it's true. They turned off the O2 this morning and ... Read on »