Health knowledge made personal
As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has already undergone two open heart surgeries (he is post BT Shunt (August 22, 2008) and post-Glenn (November 25, 2008)), and is currently awaiting his third, the Fontan procedure. He recently received treatment to coil off a large collateral vein through a heart cathetor (June 30, 2009).
This blog is a place to chronicle all we learn and feel as we raise this very special child and adjust our family life accordingly. In truth, our son McKay offers heart baby hope of the most robust proportions. Our hope is that no family will ever have to feel alone when facing a CHD diagnosis. We want to reach out to families who want a real (allbeit a sometimes too real) look at life with a heart kid. These children are not lost causes. There is good cause for hope and a cheerful heart.