Saw Dr. Hannible Smith this week. Unfortunately he didn't have a lot of good news for me. Even among the best headache physicians in the country there was no consensus on how to continue to treat The Headache. He asked about Botox and the response was mixed, so he told me we could try it but he wouldn't be able to predict the results. I told him I would have to check into Botox injections a bit before deciding to having it done. I have plenty of allergic reactions, and I don't want to have a three month battle with hives because I had to get Botoxed. Plus I like having my eyebrows move, my face seems so much more human that way.
The A-Team did an excellent job. I was in the midst of The Headache, at the nausea stage when I got there. Once I got back in a room, right away I was given a shot of zofran for the nausea and put in a quiet dark room. Not used to that - normally I am tortured in brightly lit rooms, and cannot get anything for nausea etc until AFTER the doc sees me. I am going for a psych eval to refresh my biofeedback training tomorrow and supposedly there is going to be some space aged ice pack for me to trial to see if I like it. It sounds as if I won't be able to afford it! Ice packs only cost a little bit and they last forever.
Saw my radiation oncologist today, Dr. Dunce #3. He didn't tell me my problems are not from radiation exposure this time. He did admit that I have thickening of the bowel walls which could be causing some of my symptoms (this has been present on my MRI's and CT scans since 2005). He shooed the nurse out of the room and let me know he had gotten my lawyer's request for my records and wanted to know what I needed them for. I explained I did not have a problem with Dr. Dunces care, but that the hospital had hired a physicist who didn't know how to do math, or probably use a computer, and had negligently provided no oversite for his calculations, and the physicist obviously did not double check his work, so I received an overdosage. I am 4'11" tall. The report I was given said the brachytherapy had been off 4.8%, and standard deviation was 5% so they did not feel the difference was not significance. I told him what might be OK in someone of average height of is not right for someone of my stature - a couple of more inches shorther and I would need a booster seat to legally drive here. I have still not been relased from his care and am to return in another year.
You know, I don't think I will gain one thing from my lawsuit unless it is the satisfaction that some lawyer somewhere is going to get a fat retainer from the hosptial until my case is settled or closed. That that Big Box Hospital! I'll hit you where it hurts - your budget!
I am very very very tired - having only gotten a couple of hours sleep each night for almost the last two weeks. Tuesday was a Bad Headache day and The Headache is still active tonight. I am hoping maybe biofeedback dude might have something that will help.