Some people may think I'm goofy, but I love Miley Cyrus, especially her new song, "The Climb". I think maybe young people often haven't lived enough to understand the struggles she's talking about. But it really rings true with me lately.
There's always going to be another mountainI'm always going to want to make it moveIt's always going to be an uphill battleSometimes I'm going to have to loseAin't about how fast I get thereAin't about what's on the other sideIt's the climb And boy do I ever feel like any moment, I'm about to lose my grip and slip lower.
The gastro office called me today and said since I can't take reglan or erythromycin, he wants to go in with the endoscope and inject a valve in my stomach with botox. Yes, THE Botox. Any part of that not make you cringe? And according to the nurse, he did diagnose me with gastroparesis--meaning the nerves in my stomach are damaged (paralyzed). This is usually a permanent condition. Some people develop it after the flu and recover after a year or so. I'm not even thinking about that.
I'm still hung up on 'shot in my stomach' and 'botulism toxin'.
The real downside is that the botox wears off, how long is anyone's guess. So I could have to have this procedure done 4 times a year for the rest of my life.
The only alternative is a drug called Domperidone--but it is not approved in the US (Hey, my Canada readers, I may be getting in touch with you!!) It is sold over the counter in many countries. Now I'm not one for buying drugs over the internet, but my husband has said if we have to drive to Canada to get it, that's what we'll do. I love my husband.
Here's how it stands--I am still skeptical that I have gastroparesis, only because my symptoms don't fit. So I'm going to see Dr. Awesome in 2 weeks, and ask her opinion. There's another test they can perform, except that it uses reglan (or erythr.). I'm willing to risk the reglan to find out for sure. There's an opposite condition, aka "Dumping Syndrome" (more commonly seen in patients who have had weight loss surgery--which I have not) and I fit the symptoms far more than gastroparesis. I need to be 100% sure before I move forward.
Good/Bad news--my migraines are gone. It was the Aciphex. And chances are most of that class of med will do the same thing or worse. So I have to find another med to help deal with my GERD. That flushing sound you hear is $82 down the toilet :P Right now I'm back on zantac 150 until I see Dr. Awesome.
I've had my crying jag for today. It just seems like when I get one thing straightened out, another illness rears its ugly head. And a probably permanent one at that.
I am trying to put my faith in God's hands that He knows how this is going to play out. I know it wouldn't matter if I knew "why me" because any reason might not be good enough while I suffer daily. So I'm trying to leave Him with my anxiety and take away anything good I can from this ordeal. I'm going to keep climbing and not quit.
There's always going to be another mountain
I'm always going to want to make it move
It's always going to be an uphill battle
Sometimes I'm going to have to lose
Ain't about how fast I get there
Ain't about what's on the other side
It's the climb
And boy do I ever feel like any moment, I'm about to lose my grip and slip lower.
The gastro office called me today and said since I can't take reglan or erythromycin, he wants to go in with the endoscope and inject a valve in my stomach with botox. Yes, THE Botox. Any part of that not make you cringe? And according to the nurse, he did diagnose me with gastroparesis--meaning the nerves in my stomach are damaged (paralyzed). This is usually a permanent condition. Some people develop it after the flu and recover after a year or so. I'm not even thinking about that.
I'm still hung up on 'shot in my stomach' and 'botulism toxin'.
The real downside is that the botox wears off, how long is anyone's guess. So I could have to have this procedure done 4 times a year for the rest of my life.
The only alternative is a drug called Domperidone--but it is not approved in the US (Hey, my Canada readers, I may be getting in touch with you!!) It is sold over the counter in many countries. Now I'm not one for buying drugs over the internet, but my husband has said if we have to drive to Canada to get it, that's what we'll do. I love my husband.
Here's how it stands--I am still skeptical that I have gastroparesis, only because my symptoms don't fit. So I'm going to see Dr. Awesome in 2 weeks, and ask her opinion. There's another test they can perform, except that it uses reglan (or erythr.). I'm willing to risk the reglan to find out for sure. There's an opposite condition, aka "Dumping Syndrome" (more commonly seen in patients who have had weight loss surgery--which I have not) and I fit the symptoms far more than gastroparesis. I need to be 100% sure before I move forward.
Good/Bad news--my migraines are gone. It was the Aciphex. And chances are most of that class of med will do the same thing or worse. So I have to find another med to help deal with my GERD. That flushing sound you hear is $82 down the toilet :P Right now I'm back on zantac 150 until I see Dr. Awesome.
I've had my crying jag for today. It just seems like when I get one thing straightened out, another illness rears its ugly head. And a probably permanent one at that.
I am trying to put my faith in God's hands that He knows how this is going to play out. I know it wouldn't matter if I knew "why me" because any reason might not be good enough while I suffer daily. So I'm trying to leave Him with my anxiety and take away anything good I can from this ordeal. I'm going to keep climbing and not quit.