Migraine Treatments - What do we want? When do we want it?
Posted Aug 26 2013 12:00am
I've been thinking of some of the chants and the like that I've heard from people demonstrating on Capitol Hill and how they apply to Migraines and Migraine care.
The one that sticks in my mind most is when the leader of a demonstration shouts, "What do we want?" The crowd replies, then the leader shouts, "When do we want it?"
Here's my version and the responses I'd want to hear:
What do we want? BETTER MIGRAINE TREATMENTS! When do we want it?! NOW!
Of course, a better answer is that we want better treatments yesterday, but that's obviously impossible, so I'll settle for as soon as humanly possible.
The problem is -- How do we make this happen? There isn't a single medication on the market today that was originally developed of Migraine or Headache prevention - NOT EVEN ONE. The biggest reason for that is lack of funding for seminal research into the pathogenesis and pathophysiology of Migraine and other headache disorders. How do you research treatments until you have the basic knowledge of what causes them and how they work? That's the kind of funding we want to see the NIH fund. Pharmaceutical companies can't generally do this kind of research because it doesn't end in a treatment - it's the type of research that has to be done prior to treatment development. So, everyone has been shooting almost in the dark up to now. We've been lobbying Congress for increased NIH funding, and things are a tiny bit better, but not significantly.
The truth is that if we keep waiting for government to fund this research, not much advancement is going to be made in my lifetime, my children's, or even my grandchildren's.
So, here's my next question for you -- How badly do you want better Migraine treatments? If we really want better treatments, we have an opportunity now to help make it happen...
Dr. David Dodick, Mrs. Cindy McCain, and other people involved with the American Migraine Foundation have launched the 36 Million Migraine Campaign, and I'm with them in wanting to see it succeed. The goal of the campaign is to raise $1 for each of the $36 million (plus) Migraineurs in the U.S. and use it for the needed research. You can read more about the campaign in The 36 Million Migraine Campaign - Time for Better Treatments .
I realize that many people don't have the financial resources to make many donations. That said, nobody is asking anyone to donate more than they can afford. What we're trying to do is get EVERYONE to step up and help with this campaign. When more people donate, less is needed from each person to reach the goal.
Cutting to the chase...
Almost everyone can afford to make a donation to this campaign. $5... $10... whatever you can afford. It's time we put some $$ toward research instead of continuing to just dream, wish, and complain. The truth is that if we can afford to donate to this campaign, but don't, then we forfeit any right we might have had to complain. It's that simple.
Personally, I can't donate as much as I wish I could, so I'm donating $36 per month, plus all the profits from my Café Press gift shop, until the campaign ends. You can track my donations through my 36 Million Migraine Campaign page on Crowdrise.
Just during this summer, I know of three people who took their own lives because of Migraines - because they lost hope of ever finding treatment that worked for them, because of the stigma associated with Migraine disease, just because they thought they couldn't take the Migraines any longer. This has to stop!
Will you be part of the solution? You can donate to the 36 Million Migraine Campaign by: