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Migraine Advocacy, Leadership, and Nonsense

Posted Feb 13 2013 12:00am

MimeSteepledFingers Some of you who follow me on Twitter ( @TRobert ) have been asking what's going on with a certain person who has been attacking my integrity as a Migraine patient educator and advocate. I'm not going to give him the attention he seeks by mentioning his name. I'll just refer to him by an appropriate movie reference, "he-who-must-not-be-named."

His motivation is a mystery to me, partly because he contradicts himself often, and partly because he often just makes no sense. He has said that I'm biased because I take money from "big pharma," which isn't accurate. I explained that a while back for you, my readers, not for him, in Migraines, Advocacy, and Big Pharma . Now, he's calling that blog entry "inaccurate" because I said I'm paid for blogging for Migraine.com, and that they provide the site to users at no charge by selling advertising space on the site. Now he's yammering that there are no "big pharma" ads on the site. Maybe you can see my confusion here? First he gripes about there being advertising; then he's giving me 24 hours to prove there are ads on the site or his company will "issue a press" on me. As it turns out, the reason he can't see the ads is that they're only visible to people viewing the site from the U.S. Regardless, there's simply no sense in the aggressiveness or attacks, especially when I've been quite open and transparent about all of my relationships with any company.

That's just a bit of what's been going on with being maligned by "he-who-must-not-be-named." If he lived in the United States, I could consider suing him for libel, defamation, and other things, but he doesn't live in the U.S. I suspect that's part of why he feels he can say the things he does with impunity. Of course, he has tweeted that he enjoys arguing. Go figure!

Twitter will do nothing about him and his Tweets. It's their policy that "differences" between users be sorted out between them. Since he hasn't physically threatened me, they don't even consider what he's doing to be harassment.

In any case, this makes me think of something my college president said, "You know you're being an effective leader when half the people are following you, and half the people are chasing you." Looking at it that way, maybe it's a badge of honor to be attacked by this person. I'm in good company at least. He also claims that some of the best and brightest doctors and researchers in the Migraine field are wrong in their thinking about Migraine disease, claiming that their research is flawed and biased. Yeah, right.

Usually, I'm happy to discuss different theories with people, entertaining the thought that their theories can have merit even though they fly in the face of the current conventional wisdom. In the case of "he-who-must-not-be-named," his approach has resulted in my not wanting to hear anything he says about the theories he supports because he's so certain that only his theories are correct and the fact that he attacks and vilifies anyone who disagrees. 

In the end, he's nothing more than a bully who seems to need to attack other people to prove his worth. I've been responding to him because I want patients to have access to good information and not fall for his rhetoric. I'm through with that. You are more intelligent than to fall for it. In the 13 years I've been working to bring you information and offer you support, I've never misled you, and I never will.  Responding to "he-who-must-not-be-named" accomplishes nothing, reinforces his bad behavior, and - most importantly - takes time that I could spend writing for or supporting people with Migraine and other headache disorders. He'll have to be content with talking to himself because I'm not playing his game any longer.

Live well,

PurpleRibbonTiny
 

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© Teri Robert, 2013
Last updated February 12, 2013.

 

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