I too have an invisible illness, and had no idea there was a week for it.
I have Meniere's Disease. It causes sudden onset (and let me tell you horrible) vertigo, fluctuating hearing loss (that leads to total hearing loss), tinnitus, and aural fullness (yes, I feel like I have wet cotton in my ears all the time.)
I also have Migraines, hypothyroidism, Celiac's Disease, and I'm bipolar. Let's see could the fates pick on me much more? (I know it could be much worse, however, my doctor does say that Bilateral Meniere's is one of the worst diseases you can get that doesn't kill you....it's a disease of Random Punishment, you never know when the punishment will happen, but you are always expecting it.)
I too had a lumbar puncture. I'm so sorry for your experience. I had mine done at Duke, and my doctor doesn't think that there are "normal" readings for anyone. My readings were absolutely normal, but she decided to put in a little artificial CFS to see what would happen. All of a sudden, my headache was gone, I wasn't dizzy any more, and I could hear what was being said behind me! Yes, I could Hear!
She is pretty positive I have a CFS leak. I'm going in on Wednesday to look for the leak and get a blood patch. This could change everything.
Most people who have Meniere's who have been tested have high CFS, I'm the first one who has responded to additional fluid being put in.
I'm happy my doctor uses empiracal evidence to see if someone really has low or high pressure because if she had just trusted the "normal" numbers they would never have found out what is wrong with me.
I hope you get relief from your migraines.
I've been to so many doctors, for so long for so much. For example, I was finally diagnosed with Celiac's disease just 5 years ago (I'm 47) They told me I had fibromyalgia, IBS....and all I needed to do was stop eating gluten. But it took finding the right doctor, for everything, it takes finding the right doctor.
I really wish there was a way to find the right doctor without having to waste so much time.
I sincerely hope that you can find the right person to help you.
Don't worry, I won't ask if you've tried this or that. But I will encourage you to keep looking, you never know what you might find.