Wow, you really HAVE been through quite a lot! Not to sound horrible in any way but, I'm relieved to have someone to share with because I'm like you, a "worry wart". :) I've also been going through testings for thyroid problems and have had 3 biopies done on that and another one scheduled for September of this year. I have a multinodular goiter with one nodule that shows up as "cold" on scans so, they are watching that one and every 6 months, I go back to have another ultrasound and if there's been ANY growth in size, another biopsy. It's all becoming a bit much but, because my thyroid is still seemingly operating within normal realms, the (the surgeon and endocrinologist and my family doc) are saying to "wait and see" and are saying that removing a functioning thyroid and having to go through the hormone balance stuff can get pretty rough and possibly very uncomfortable for me if it's not entirely necessary. But, the constant checks, biopsies and waits for results on them are getting to be a headache and now...this???
I'm like you menstrually. I've always had some pretty bad PMS symptoms, and later in life, I've had some horrific "flood" periods that seemed to go on and on. At one point, several years ago, they were so heavy that I couldn't leave the house some days or go far because I'd soak through overnight pads really quickly. I nearly headed for the ER a couple of times. Then, came the light periods where I wondered if they were periods....more just a day of a very light flow, followed by a few days of moderate then light spotting and done. Between 2007 and 2008, I had virtually, one or two days of spotting and nothing in that entire year. Then, came three periods in 2008 (last one in December) and a day or two of spotting in February and March of this year, then all heck broke loose in my life with one upsetting event after another and I started this on and off light spotting that's not stopping at the beginning of April right up to the present day.
The problem for me is that I'm in Canada and waiting times to see specialists are horrific. Often 3 to 4 months waiting times before a consult and then, any procedures that need to be done are often weeks away after that. So, transferring doctors is not an easy task at all. I was just saying to my husband yesterday that it took nearly 3 months to get THIS appointment (on the 20th of July) just for that 5 minute visit with this gynecologist and another 3 weeks to the date of the biopsy appointment and then, it will be another 4 weeks for the results to come in. That means that no one will do anything about this spotting or the thickened lining for at least another 7 weeks from now on top of the already 3 months that I've been going through this on and off spotting! In the meantime, the waiting is mental and emotional hell and the spotting is annoying to say the least. I'm irritated beyond belief with pads and liners, never knowing when it will start or stop again. It's all kind of making me want to say..."Just book an OR and do the hysterectomy!" I actually half joked (I really wasn't only joking) in saying to my family doc...."Why don't they just book me into an OR, have the 2 surgeons at the ready and one can do the hysterectomy and the other the thyroidectomy, then put me on some great drugs, let me feel miserable for a couple of weeks and I'll be done with everything at once!" She laughed. I was thinking...I wish! ;)
Hopefully, like you're hoping for, you'll go into menopause and your fibroids will shrink as they usually do and life will become pleasant for you again!
I know that right now, I feel like I'm in "Hormone Hell"! My mood swings are horrendous. I can go from laughing to being a screaming irate maniac to crying, all in 120 seconds! I'm foggy headed, I'm COLD a lot of the time where I used to have to peel off down to my underwear with hot flushes. The sore breasts (had my regular mammograms every year), the crampiness at times, low backaches (that come and go with the spotting), the premenstrual headaches (very specific headaches I've always gotten premenstrually) and everything else is driving me NUTS!!!! I went to the healthfood store to see what would help all of this and I was given a "Mexican Wild Yam Extract" cream. Of course, it's not like the natural progesterone creams that can be gotten in the U.S. over the counter. I know our bodies can't convert the diosgens into progesterone as that has to be done by a compounding pharmacy up here but, it's all prescriptive up here and I can't even order it as Canadian Customs would consider it "illegal" or "contraban" were I to try to smuggle it over the border. I really think that I'm lacking in Progesterone by comparison to Estrogen (thus, the uterine lining thickness) and I can't get anyone to do a hormone panel in bloodwork to see.
I usually am very active in being my own medical advocate and research things before I make decisions. But, right now, I feel very alone and scared and frustrated and on top of not feeling well with these hormonal influences as well as Life's Garbage that I've been having tossed my way over the past several months, (lost my job due to the recession, daughter moved out with a creep who is a druggie, my dog has cancer, a fight with my brother whom I've always been close to and we haven't spoken for nearly 6 months now, an elderly and ill father-in-law who needs constant help and care, 2 of my best friends are out of my life for differing reasons and the list goes on and on....all over the past 7 months or so) So, right now, I'm quite lost and I even went to see a therapist to help me cope more healthfully with some of the situations that are causing me so much turmoil. I'm doing everything I know how to do to help myself but, I'm really feeling frightened, alone and lost right now. But, I keep trying to push forward and do what I need to do as I need to do it and try hard to just get through it all the best way I know how. I'm sure that you can relate in some way or another.
Please just know that I'm really grateful to have you and Lynette talk to me about this. I know I will get through this...even if it does mean surgery as a bottom line but, it's the "meantimes" that are frightening and the support you've both shown me really means a LOT!