I have been back on the Ceftin for a little over a week after being off of it for 3 weeks due to a dye off reaction that was to strong. Now that I am back on my pain level is soaring.
While I was off I felt great, my energy was good my mental state was the best it has been in ages with a major decrease in depression and anxiety. Even the constant high pitched buzzing in my ears seemed to markedly decrease. However the last few days my pain level has been climbing and for the last 2 nights I had to crawl up the stairs at night to go to bed because I could not climb the stairs standing. I am able to walk a little better early in the day but at the end of the day it gets tough. I may need to go back to using my cane if this keeps up.
The pain is a migrating joint pain involving hip and knee joints as well as a burning hot nerve pain in both legs. I am also having a lot of back pain and have had to go back to using my T.E.N.S. stimulator. The pain causes stabbing jolts in my joints that makes me unsteady at times. Sleeping is agony and I toss and turn all night.
I also am having the chills/heats again. I am chilled to the bone all day and burning up at night. It is very different from hormonal night sweats that I have experienced as it is a much more intense heat with no sweating. My legs and hips burn like they are on fire and I do not get much sleep. Despite all of this I am continuing to increase the Ceftin dose every 4 to 5 days because I want to get through this and the constant setbacks and stopping the medication just slow things down unbearably.
One of the worst things about Lyme is how it messes with the brain causing such terrible depression, anxiety and in some people Lyme rage ontop of the intense pain. Since restarting the Ceftin this time my mind has remained clear. I am still free of the terrible anxiety and depression which is a blessed relief because when that is combined with the pain life gets really unbearable. So I am counting my blessings and able to stay positive and even work in the studio despite this pain setback, for that I am very grateful.
While I was off I felt great, my energy was good my mental state was the best it has been in ages with a major decrease in depression and anxiety. Even the constant high pitched buzzing in my ears seemed to markedly decrease. However the last few days my pain level has been climbing and for the last 2 nights I had to crawl up the stairs at night to go to bed because I could not climb the stairs standing. I am able to walk a little better early in the day but at the end of the day it gets tough. I may need to go back to using my cane if this keeps up.
The pain is a migrating joint pain involving hip and knee joints as well as a burning hot nerve pain in both legs. I am also having a lot of back pain and have had to go back to using my T.E.N.S. stimulator. The pain causes stabbing jolts in my joints that makes me unsteady at times. Sleeping is agony and I toss and turn all night.
I also am having the chills/heats again. I am chilled to the bone all day and burning up at night. It is very different from hormonal night sweats that I have experienced as it is a much more intense heat with no sweating. My legs and hips burn like they are on fire and I do not get much sleep. Despite all of this I am continuing to increase the Ceftin dose every 4 to 5 days because I want to get through this and the constant setbacks and stopping the medication just slow things down unbearably.
One of the worst things about Lyme is how it messes with the brain causing such terrible depression, anxiety and in some people Lyme rage ontop of the intense pain. Since restarting the Ceftin this time my mind has remained clear. I am still free of the terrible anxiety and depression which is a blessed relief because when that is combined with the pain life gets really unbearable. So I am counting my blessings and able to stay positive and even work in the studio despite this pain setback, for that I am very grateful.