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Ready, Set, Go…

Posted Jul 01 2012 3:31pm

After a few unexpected bumps in the road, I have finally been approved for the insertion of the PICC line (Peripherally Inserted Central Catheter) next Friday, July 6.  This will allow me to receive Lyme treatments both orally & intravenously.  I will have more weapons that are stronger to fight the Lyme.  The current plan is to receive up to 4 antibiotic treatments (fusions) through the PICC line 3 days a week & cleansing IVs the other 2 days.  In addition, I will take oral antibiotics 7 days a week.

The expected costs are up to $6,500 per month for at least 9 months of IV treatment…all out of pocket.  If you are able to donate any funds to help with the cost of the treatments, there is a ‘donate’ button on the upper right side of my blog.  By clicking on the link, it will take you to Paypal where you can make a contribution.  We appreciate any & all help that can be provided.

Why are we paying for these treatments out of pocket?  (I will try to provide the short version here.)  Lyme Disease is one of the most controversial issues in the medical field today.  The International Lyme and Associated Disease Society’s (ILADS) states that chronic Lyme Disease exists and patients can benefit from varied & lengthier treatments.  However, the insurance companies side with the Infectious Diseases Society of America’s (ISDA) guidelines that states there is no such thing as chronic Lyme Disease so IV treatments are not necessary & therefore do not have to be covered.  The ISDA takes the stance that a 3-4 week course of oral antibiotics will “heal” you from Lyme Disease.  Given the extent of the Lyme Disease I have hosted in my body for a number of years & how much it has spread, I disagree strongly with the ISDA’s standpoint.

We are grateful for your prayers just as much as a monetary donation.  I know this will be the greatest challenge I have every faced.  Please pray for perseverance, strength, & the slow process of recovery.  Also, My Better Half (MBH) has taken on all the household tasks in addition to nurse, cheerleader, dog handler, etc.  The list is literally a mile long & I am so grateful for all the help.  This will be as much of a challenge for MBH as it will be for me.

The treatment plan seems daunting…ok more like I am standing at the foot of Mt Everest.  Everyone reacts to the treatments differently so you go into this with a lot of unknowns.  There is an initial period of herxing that can last days, weeks, or months.  The Lyme does not go away without a fight.  Instead, as the Lyme dies off, this is a time when your symptoms return with a vengeance & you can also experience new symptoms.  Maybe this is why my doctor advised me not to Google ‘herxing’!

Thank you for your perseverance in reading this long post!  Your cards & emails have meant so much.  Let the fight begin!

Articles Regarding This Controversial Issue:

http://www.washingtonpost.com/national/health-science/the-doctor-diagnosed-chronic-lyme-disease-but-many-experts-say-it-doesnt-exist/2012/02/06/gIQA4aMHtR_story.html

http://www.idsociety.org/Lyme_Review_Panel_News_Release/

http://www.myleftnutmeg.com/showDiary.do?diaryId=8493

 

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