The CDC recommends certain protocols regarding testing for Lyme disease.
"CDC recommends a two-step process when testing blood for evidence of Lyme disease. Both steps can be done using the same blood sample.
As stated in my post, dated January 19, 2008 Link Here, if you initially have a negative result from the ELISA test, re-test, as there are many instances when there are false negative results and many people actually find that they have Lyme disease.
Here are some general comments from others who have been through the testing and treatment ordeal. Disclaimer: These are strictly opinions and may contain information that individuals may state is factual. All stated as fact has not been verified as factual. Link Here
"The Infectious Disease doctors I've worked with are usually very reluctant to diagnose Lyme disease even with a positive test. It looks like a lot of other diseases as the summary states."
"More than any two week treatment of antibiotics that your average physician would prescribe for Lyme.
"If you have the bullseye, you're lucky. Only approximately 30% do. It is true, that if you see it and catch it early, you can eradicate it before it gets into organs or the central nervous system. I however, was not so lucky and floundered around for 4 years worth of "Chronic Fatigue Syndrome" "Chronic Mono" diagnoses that went nowhere."
"They have found that Lyme disease mimics many of the major symptoms of these diseases. I have Lyme and I have been taking both drugs for Parkinson’s and Alzheimer's to help alleviate my symptoms. Further there is more and more evidence showing that many of these diseases may have roots in Lyme disease. Since Lyme is still very hard to diagnose it makes studying this even harder, but I can tell you in the Lyme clinic I go to, there are people there that have been diagnosed with everything from schizophrenia to Alzheimer's and ALL have made a recovery."
"At the age of 10 I had chronic headaches and inflammation in my leg joints to a point where I couldn't walk without experiencing excruciating pain. Over 2 years, I saw many doctors and was told that I had juvenile arthritis, was a generally weak person and needed to exercise, that I was born with one longer leg, that I was experiencing growing pains, etc etc. It was only until I was referred to a specialist for an x-ray that he took a single look and knew immediately that I had Lyme disease. Two months of anti-biotics and anti-inflammatories later, I was free, (and very pissed at my previous physicians)."
"I'm 27 now, I've had symptoms since I was 14 years old. For the past 3 years I've been taking antibiotics. It’s a slow recovery but long term antibiotics do help, immensely. I'm now recovering. There are a few issues I still have but I am so much better then I was when I started treatment. Lyme Disease has taken 13 years away from my life and what scared me the most is that I didn't know what they hell was happening for the first 7. It wasn't until my mom found this research center and they matched my symptoms for a Lyme disease test. Even after that, most doctors I see are reluctant to even admit I've been sick. I got to my doctor every week for shots and the therapy is expensive. To make things worse the Infectious Disease Doctors Association just released new guidelines earlier this year that pretty much rule out most cases of chronic Lyme. The Lyme community is up in arms about this, and if you think you may have been suffering from Lyme do not go to one these quacks. They will simply tell you that Lyme doesn't exist and the most amount of antibiotics you will get out of them is 4 weeks. Now mind you there is no evidence showing that 4 weeks of antibiotics even helps. They know this and still will not back down. Its makes me mad but I know I am extremely lucky to have found a doctor who knows how to treat chronic Lyme. I am not where religious but I have to say it is a blessing."
"For Lyme Disease? There are tests, it's just that most of the commonly performed tests (ELISA) can be wildly inaccurate and false negatives are common. PCR testing is apparently more reliable and accurate, with a PCR test they actually can determine whether or not you have DNA from the Lyme Borrelia spirochete in your body. False negatives are much, much rarer with PCR testing.
As you can read from the above comments, there are many differing experiences regarding Lyme disease, diagnosing, and treatment. The important piece of information that I wish my readers to take from this is that testing may lead you to the answer you have been seeking. If the tests ultimately end up with a final negative, at least you will have found that Lyme disease is no longer on your list of optional diseases for your symptoms. If you find that Lyme disease is your culprit, you will find great relief in mind, body, soul, and pocket-book.
http://issuesoncall.blogspot.com (previous posts with sources)