A friend wrote me and asked me how I cope and stay so positive (which I don't always manage to do) and I answered her in the letter below. I will share it here in hopes that it will help others who are suffering also. I have been struggling for many years. My known tick bite date was 9 years ago but we think I may have had it even longer than that from a tick bite that was never found.
I understand what you are going through and I pray you find healing. I am so glad you have your faith. I don’t do so well with “ organized religion” these days but my faith in God is what sustains me. It is not easy and no one understands, not really. Most think we are whiners but it is important to be vocal because it saves lives when other sufferers know they are not alone.
I have had to use a cane and even a wheel chair at times so I know how you feel about losing mobility. You and I need to focus on gratitude, what do you have in your life that you love.... your beach trips, your pool workouts (I would love both)! I have my amazing husband, my dogs and my art and a great studio.
The other thing is to allow yourself to be loved, pamper yourself, burn expensive candles, buy spa bath toiletries and take long hot baths (or whatever makes you feel good). Wrap yourself in a super soft fleece blanket and listen to a guided meditation or meditative music. Try to create and birth a sense of joy and love within yourself. Allow yourself to be cradled in Gods loving embrace, really visualize God or Jesus holding you, loving you, filling you with hope and joy.
Take one step at a time, some days that means literally one minute at a time! Get through this minute, this day and believe in the promise of the next day. Don’t forecast pain and suffering into your future, picture perfect health and thank God for healing you a hundred times a day, even when it does not feel real, even when it hurts so bad and you are so terrified you think you have to end it.
There is healing of body, mind and Spirit, sometimes we do not get all three. But if we are healed in mind and Spirit then a broken body will not have any power over us. I read scriptures from many different spiritual backgrounds and I found great healing in what the Buddhists taught me about mindfulness and the Sufi’s taught me about loving God. When I combine that with my Christian faith in God I am given great power over the illness in my body. Day to day it is hard, I know…and I will pray for you!
Be Well,
Linda
I have been struggling for many years. My known tick bite date was 9 years ago but we think I may have had it even longer than that from a tick bite that was never found.
I understand what you are going through and I pray you find healing. I am so glad you have your faith. I don’t do so well with “ organized religion” these days but my faith in God is what sustains me. It is not easy and no one understands, not really. Most think we are whiners but it is important to be vocal because it saves lives when other sufferers know they are not alone.
I have had to use a cane and even a wheel chair at times so I know how you feel about losing mobility. You and I need to focus on gratitude, what do you have in your life that you love.... your beach trips, your pool workouts (I would love both)! I have my amazing husband, my dogs and my art and a great studio.
The other thing is to allow yourself to be loved, pamper yourself, burn expensive candles, buy spa bath toiletries and take long hot baths (or whatever makes you feel good). Wrap yourself in a super soft fleece blanket and listen to a guided meditation or meditative music. Try to create and birth a sense of joy and love within yourself. Allow yourself to be cradled in Gods loving embrace, really visualize God or Jesus holding you, loving you, filling you with hope and joy.
Take one step at a time, some days that means literally one minute at a time! Get through this minute, this day and believe in the promise of the next day. Don’t forecast pain and suffering into your future, picture perfect health and thank God for healing you a hundred times a day, even when it does not feel real, even when it hurts so bad and you are so terrified you think you have to end it.
There is healing of body, mind and Spirit, sometimes we do not get all three. But if we are healed in mind and Spirit then a broken body will not have any power over us. I read scriptures from many different spiritual backgrounds and I found great healing in what the Buddhists taught me about mindfulness and the Sufi’s taught me about loving God. When I combine that with my Christian faith in God I am given great power over the illness in my body. Day to day it is hard, I know…and I will pray for you!
Be Well,
Linda