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Let The Countdown Begin

Posted Nov 04 2009 10:08pm

The date it set; we’ve got my appointment at Mayo scheduled. June 18th is the fatal day {if I’m remembering correctly}. I’m led to understand that I’ll be seen first by an ophthalmologist, next a neurologist, and last but not least an infectious disease doctor. I think they’ll be working as a team to diagnose me, and hopefully help figure out what’s causing my high spinal pressure. So I’ have to be at the hospital at 8 am, and I’m expecting a full day of discussions and most likely more tests. Oh lucky me.

 

My LLMD wants us to mention the Lyme Disease and Bartonella co-infection to the doctors. She knows that they’ll probably ignore it, but better to be safe than sorry. They may, just may, listen this time. It could have some connection, and she doesn’t want them to discount the fact that an infection could be the cause of the raised pressure. Plus, I have the physical proof of the Bartonella. I have the rash on both hips, behind both knees, and on my chest. The lines on my hips have visually decreased {by a little less than half their size} in the past few months since I began an antibiotic that targets the infection. My LLMD is thrilled, as am I! And, eventually Mayo will have to step up and accept the diagnosis  and existence of Chronic Lyme Disease. I’m sure of it. It’s only a matter of time.

 

I’m actually nervous about these appointments. Lately I haven’t been when it comes to seeing a new doctor, or starting a new treatment. There’s been so many of them. But, this time it’s a lot to take in at once. I’m not sure what to expect either. I don’t want them to find anything, but at the same time I need them too. We need to know what’s going on so we can treat it. But, the thought of another condition to live with and come to terms with is daunting. I’m hoping, and telling myself, that it’ll be fine. I know I’ll make it through it. That I’m sure of. It’s the waiting, the anticipation, and the vast array of unknowns that I’m going to have troubles with.

 

I’ll update more tomorrow,

Have a wonderful Memorial Day!

Peace, love, and healing, molly

 

“There are things known and there are things unknown, and in between are the doors of perception”
      ~  Aldous Huxley

The date it set; we’ve got my appointment at Mayo scheduled. June 18th is the fatal day {if I’m remembering correctly}. I’m led to understand that I’ll be seen first by an ophthalmologist, next a neurologist, and last but not least an infectious disease doctor. I think they’ll be working as a team to diagnose me, and hopefully help figure out what’s causing my high spinal pressure. So I’ have to be at the hospital at 8 am, and I’m expecting a full day of discussions and most likely more tests. Oh lucky me.

 

My LLMD wants us to mention the Lyme Disease and Bartonella co-infection to the doctors. She knows that they’ll probably ignore it, but better to be safe than sorry. They may, just may, listen this time. It could have some connection, and she doesn’t want them to discount the fact that an infection could be the cause of the raised pressure. Plus, I have the physical proof of the Bartonella. I have the rash on both hips, behind both knees, and on my chest. The lines on my hips have visually decreased {by a little less than half their size} in the past few months since I began an antibiotic that targets the infection. My LLMD is thrilled, as am I! And, eventually Mayo will have to step up and accept the diagnosis  and existence of Chronic Lyme Disease. I’m sure of it. It’s only a matter of time.

 

I’m actually nervous about these appointments. Lately I haven’t been when it comes to seeing a new doctor, or starting a new treatment. There’s been so many of them. But, this time it’s a lot to take in at once. I’m not sure what to expect either. I don’t want them to find anything, but at the same time I need them too. We need to know what’s going on so we can treat it. But, the thought of another condition to live with and come to terms with is daunting. I’m hoping, and telling myself, that it’ll be fine. I know I’ll make it through it. That I’m sure of. It’s the waiting, the anticipation, and the vast array of unknowns that I’m going to have troubles with.

 

I’ll update more tomorrow,

Have a wonderful Memorial Day!

Peace, love, and healing, molly

 

“There are things known and there are things unknown, and in between are the doors of perception”
      ~  Aldous Huxley
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