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It’s Raining, It’s Pouring…

Posted Oct 04 2009 11:14pm

Seems like a good time for an update! It’s absolutely pouring sheets outside and as I pondered the things I could be doing right now, watching the rain pour down on the street below from my picture window and writing up an update seemed high on my list. Higher than doing something about that pile of dishes in the kitchen, or attacking my chemistry homework, or even {gasp!”} reading. And, with this weather I’m sure you’ve guessed that my energy is in short supply today. Better safe than sorry. In truth, I’m saving my energy today because in a few hours I’m meeting up with a few of my best friends to spend some quality chilling out time before school begins again. Don’t even ask when school starts for me either, because I have no clue. I like it that way! Summer might, just might, last a few days longer.

 

I last wrote before going in for my monthly LLMD visit. At that point, and still, I was having horrible abdominal pains and was getting sick after eating anything, even gluten-free foods. Things have been a mess! So, she checked my spleen, making sure it wasn’t a problem there. And she came to the conclusion that I assumed she would – digestive issues, nothing more. Good news, and bad. I mean, a girl’s gotta eat! She explained it to me saying that my gut and intestines are so inflamed and swollen right now that anything will set them off. We need to get this straightened out! And when I said that I was having highly increased urination too, she said that she would expect that from my situation. Not only am I still on a diuretic medication but my inflamed gut is pressing down on my bladder making me have to pee almost on the hour! And come on, that’s just annoying.

 

So doctor’s orders: I’m now taking L-glutamine {an amino acid} before breakfast and dinner {1 gram daily}, and digestive enzymes with each meal. L- glutamine is used by some Celiacs to promote healing of the intestines and villi. And as for the digestive enzymes we actually found a brand that carries a special formulation for those can’t handle gluten. It helps ease discomfort when small amounts of hidden gluten are digested, and it too will promote healing in my inflamed abdomen. I’ve only been on these a few days, so we’ll see how they work out. I’m hoping they really will because at this point I’m still getting sick every time I eat.

 

In other LLMD news, I’ll be starting a few new herbal tinctures that have shown great success when treating Lyme. One, Cumanda is used to treat both Lyme and co-infections. So it’ll be a good fit for me, since my Bartonella treatment didn’t sit too well with my body. It’s an anti-bacterial/fungal/viral/parasitic and anti-inflammatory on top of it! The second is Pinella, is used to eliminate toxins from the brain and central nervous system. And, *BONUS* it treats brain fog!! YES! Please! I’ll even eat the cherry and get sick if I can have some mental clarity for school in September!

 

I’m also lined up to get my co-infection panel done in the coming weeks. Separate infections other than Lyme can be spread by ticks, and when a person is infected with more than Lyme alone it makes treatment more difficult. I’m being treated for suspected Bartonella, on the basis of several of my common symptoms and the rash that is telling of this particular infection. I have the rash on both hips, my chest, and formerly on my knees. But, I’ve never had a blood test for Bartonella. My LLMD also suspects that I could have other co-infections. If I do, or if I don’t, it’s just best to check and be sure. I’ll get the blood test 2 or 3 days after I start the Cumanda. That way we can stir up my immune system response a bit before testing.

 

The results are confusing though. I don’t want to have too much on my plate and be overwhelmed with yet another infection to treat. But, I also want to find any and all possible reasons for my being so sick and treat them! So I’m in some ways hoping for positive test results. There’s also the common false-negative to worry about. So if things come up positive, we know I’ve got it. If they all come up negative, there’s still that questions of doubt. Screwed up, right? I know. We desperately need more accurate tests.

 

I think that’s all I can update for now. I’ve got some friends waiting for me :)  I’ll finish it up soon, no worries! But I’ll give a hint: I’ve got great news from my eye specialist!

 

Peace and healing, molly

“The greatest healing therapy is friendship and love.” ~ Hubert H. Humphrey
Tagged: Bartonella, Confusion, Doctors, Friends, Friendship, Gluten-Free, Healing, Hope, Lyme Disease, Medications & Supplements, Symptoms
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