“You look great! You look so healthy.” would normally be a nice and reassuring thing to hear- when you’re chronically sick though and struggling with an invisible disease where getting out of bed or even thinking of the normal life you used to lead is exhausting. The worst words that someone could utter is how ‘healthy’ you appear. I am anything but healthy.
Lyme comes with hundreds of burdens among them obviously being symptoms, treatment, complications of treatment, limited ability, herxing, I could go on and on.
But for me, the biggest hurdle is the invisible aspect. It seems impossible to feel this awful and look so normal. I often wish I had a broken bone, or a black eye to justify the pain I’m in.
Us lymies live in a veiled world where, for the most part the only people who understand what we’re going through is each other.