It may be a bit confusing for anyone unfamiliar with CFS and/or Lyme to understand how exercise can actually make it better -- most people think that being disabled means one can't exercise, but for these two diseases controlled exercise can actually make it better! Let me reiterated the part about controlled exercise!
The key for me is to keep my intensity (measured by heartrate) low and to keep my duration low. I recently stumbled upon the SHINE protocol by Dr. Jacob Teitelbaum. He developed CFS in med school and put together this treatment protocol. The last E in SHINE stands for Exercise: Do not push to the point of crashing the next day. Start by walking as long as you comfortably can (even if that is only two minutes). After 10 weeks on treatment, start to increase your walks by up to one minute more each day as able. When you are up to an hour of walking, you can increase intensity.
So this week in addition to following my wake-up and bedtime routines to get more out of my sleep I'm going to try to get some non-aerobic exercise every day that I wash my face & brush my teeth. If I'm too crashed to wash m7 face & brush my teeth then I'll grant a pass for the exercise; otherwise I'll wear my heart rate monitor to make sure I keep my heartrate below 117 & I'll do some easy Pilates, yoga, weights or walking for at least 2 minutes :) I like what she said about getting credit for the smallest things - even putting on your shoes and walking out the door counts -- I don't even have to really go anywhere! Not much, but enough to start rebuilding my stamina without paying for it the next day. I'll keep you posted as this might be an ongoing one, but it's certainly one thing I can tackle this week.