My biggest question when I got sick was why. At the time I was finishing my Masters’ degree & looking forward to the start of my teaching career. Instead I spent time with doctors who dismissed me & told me it was all in my head. Now I realize that part of answering the why question is to share my experiences & inform people about Lyme Disease, chronic Lyme Disease & co-infections. I knew so little about Lyme Disease (when I was diagnosed) & the information was overwhelming. As part of answering the why question, I recently did an interview that will make people more aware of this devastating disease. The link is below.
Update on the most recent medication cycle: People say that Lyme Disease is a crazy maker. I guess it was my time to end up on the lyme roller coaster. Things have been going up & down with a few twists & turns. This was a challenging time that also included a lot of positives. Sometimes you have to look a little closer to find the positives but they were definitely there.
I started taking the voluntary cycle of IV & oral antibiotics until my second PICC line came out unexpectedly. A lactated ringer leaked & saturated most of the PICC line, including the insertion point. So we were off to the ER to make sure all of the PICC line had come out. I had to laugh when one of the ER nurses recognized me from the first time my PICC line had been removed. It was also a blessing to have a supervising doctor (in the ER) who wanted to learn more about Lyme Disease & chronic Lyme Disease. We usually have to convince the doctors that chronic Lyme Disease exists so this was a refreshing change. Now I am solely on oral antibiotics for an indefinite period of time.