My visit with the urogynocologist yesterday, didn't go as I had planned. The purpose of meeting with him was to discuss alternative of testing and treatment for my Interstitial Cystitis. The meeting quickly took a detour as they had detected blood in my urine--the last thing that I had anticipated. Actually, only two minutes before they told me I had blood in my urine, I teased the nurse saying, "That is not blood in my urine, it is due to pyrdium--it turns my urine red." My heart sank when the nurse just waltzed in and said, "Positive for blood and increase in nitrates." Over all the tests that have been run on me, they have never detected blood in my urine.
The doctors has placed me on Cypro for seven days just in case that it is a bacterial infection. A lab culture is being sent off to see if bacteria grows. It takes three days--in my opinion, not nearly long enough to see if something grows, but I am at the mercy of the doctors.
So many things are running through my mind
What if I have to get another cystostomy? I vowed the last time that I would never allow a cystostomy again.
What if my bladder wall is bleeding due to the inflammation?
What if it is a bladder infection caused by Lyme or a co-infection, which will not show up in the culture?
What if my IC is getting worse and not better after all the maintenance & treatments I have been doing to try and get better?
What if, what if, what if. . .
This what if game is exhausting, but hard for me not to play. I want to give it all to God, but I have a hard time releasing it. It is like a child giving away his/her favorite toy; they hold on to it as the other is trying to pry it out of the child's hands.
It is not abnormal for IC patients to have blood in their urine, but that was the one thing I had going for me. I am a nervous wreck and praying that it is only a bacterial infection that can be cleared up with antibiotics. Some words of encouragement from you would be greatly appreciated.