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ANGRY

Posted Jan 09 2012 7:41am

'ANGRY'

Written in September 2011 by Lyle from London.

I am sure I am repeating what many people feel, but I wanted to say this:I am angry that the combined forces of the world's medical and pharmaceuticalpowers haven't seen fit to carry out concerted research to establish a test thatprovides a 100% proof of the existence or non-existence of Borellia bergdorferiin the human bodyI am angry that that same vastly wealthy, knowledgeable and powerful collectionof people has done little effective research into finding a drug or treatmentthat definitively removes borellia bergdorferiI am angry that significant numbers of the world's medical profession do noteven know of the existence of Lyme diease, and would not recognise a bulls-eyerash as a definitive diagnosis of Lyme disease, let alone consider Lyme diseaseas a diagnosis for the multitude of other symptoms it can causeI am angry that significant numbers of the world's medical profession adhere tothe belief that 2-4 weeks of docycycline will remove borellia bergdorferi fromthe human body despite the massive and continually increasing evidence that thisis not trueI am angry that there are doctors in our supposedly enlightened culture whodisdain their patients when they express the concern that they may have LymediseaseI am angry that multitudes of doctors believe that the results from simple testsfor the presence of Lyme disease are 100% accurate, despite evidence andstatements to the contrary from the organisations carrying out those testsI am angry at the ignorance of medical practitioners who believe that Lymedisease only exists in limited geographic areas, despite extensive evidence thatticks will attach themselves to any warm blooded creature, including birds whoare self-evidently not limited to specific geographic areasI am angry that my joints are unbelievably painful if challenged by any but themost mundane movements despite one month of intra-muscular penicillin and oralCefuroxime supported by Allicin, Banderol/Samento in sequence and a mass ofsupplementsI am angry that there is not a clear path that can be taken by all suffers fromLyme disease that will clear their symptoms and allow them the lives they usedto lead - therefore saving society/insurers/government the vast ahnd rapdilygrowing amounts of money required to help alleviate their pain, inability towork, need for supportI am angry that there are people far worse off than me who have struggled foryears to return to some semblance of a quality of life and I can do nothing tohelpI am angry that my healthy and active life has been taken away from me and theonly avenue back is a long, very slow, very expensive and very painful clawingback using drugs and supplements that both I and my doctors hope will work,because none of us really knows for sure what the answer is or what the problemis - we just know that 2-4 weeks of docycycline is not the answerI am angry that there are thousands of people out there who cannot afford thesame treatment and have to stumble along without the medical help they so sorelyneedI am angry that there are people on this earth, let along doctors governingmedical organisations, who cannot see the tsunami that is growing around us alland who insist on prosecuting the medical professionals who are trying to helpus get wellTo those doctors I say the following:- The current tests for Lyme disease are known to be inconclusive - why are younot urging your profession and academe to focus on research to develop effectivetesting regimes?- If Chronic Lyme disease does not exist then please tell me and thousands ofother sufferers, what it is that is causing our symptoms - we are not depressed,and we are not imagining them.- In the absence of conclusive tests - why do so many of your profession blamethe patient rather than treating the symptoms?- Evidence exists that long term antibiotic treatment has been successful inlarge numbers of cases. Why do you not pursue that path? Why do you attack itwhen the 'accepted' path has not demonstrated success? The 'accepted' treatmentfor ulcers was reduction of stomach acid until Barry Marshall and Robin Warrenproved in 2005, by infecting and then treating themselves, that ulcers werecaused by helicobacter pylori. Does this not suggest that we could face asimilar situation with Lyme disease?- Why are you wasting even a moment of your lives attacking doctors who aretrying to treat us when you could be focussing on helping us, the patients whosuffer every day?

Thank you Lyle from London for giving permission to re post your comment which you posted on Eurolyme .

Your experience was not dissimilar from my own, a history of my illness is in my right hand side bar of this blog.

Your recent post 'Improvement there is hope' starts by saying 'Six months ago I couldn't put my socks on or sit down without pain. When I stood up it was like a 90 year old creaking out of a chair, hobbling along for a while until the joints loosened up again.'

ending :-
'Just wanted to say that the right treatment really does seem to work - if I continue to improve at the very slow but steady pace of the last two months then the future is bright. Yesterday I ran up the stairs - haven't been able to do that for the last 8 months!
Lyle'

How many patients with arthritis and muscle weakness and many other symptoms could in fact be suffering with an undiagnosed case of Lyme Disease and like you and I and many hundreds of others get well on long term antibiotics. It is like winning the lottery but actually even better what price can be put on regaining a healthy, pain free and without disability body.

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