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May - Lupus awareness month by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Wow, this month has just flown by...spreading awareness re: arthritis as well. I didn't realize that there were so many different types of arthritis? I've got rheumatoid art ... Read on »
Complications by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus I have been diagnosed for about 15+years of lupus nephritis, I also have the osteopenia in my lower back & spine (I was going to PT 2x week, but the therapist I was working ... Read on »
Is it really Greed or Grieve? by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus I guess now we are in a pickle, I don't know who said that originally, but you generally you would hear that phrase on a cartoon or a comedy. The economy has taken a toll o ... Read on »
15 minute interview (supposedly) by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus I'm scared to say, but she sounded like [a pharmacist I know] Sara & like OMG (this crazy lady is applying for life ins, ha!)...she was making me spell every darn thing, so ... Read on »
Technology by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Trying to keep up with technology has really left me behind . . . and, I basically forgot. I just relate it to +lupus fog. I am really going to make an attempt to keep up. ... Read on »
Heck, Where Have I Been? by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus I can't believe how long ago my last post was updated...I was having a somewhat good day until I did the un-mentionable...I went into a store with very cute clothes, I thoug ... Read on »
Posting re: comment from Roberta Brown by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Ms. Roberta Brown, are you wanting to tell me your story that you have Lupus and continue to work until you are 50 years old? I wasn't sure what kind of question you were w ... Read on »
new things, new ideas & finally new treatment... by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Yesterday, what a day!!! Benlysta got approved for treatment in Lupus patients which hasn't happened in over 50 years!! Such an accomplishment which has been all over the ... Read on »
finally, insurance??...& message to Dorie by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus This is what it has come to...I have Medicare A & B, seperate drug insurance, supplemental insurance. I think that is about it...but when you add it all up, wheew! I probab ... Read on »
SSDI; Medicare; Etc. by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Whoa!!! The roller coaster ride has begun. Filing for SSDI (Social Security Disability Insurance). 98% of the time, the initial filing is always denied. Then we had to go th ... Read on »
It has been a while...let me start slowly with my updates.... by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus In the end, I finally got SSDI (Social Security Disability Insurance), thank you God! It just took almost two years to get it done. Now I am finally on Medicare, and that ... Read on »
...everything falls into place... by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Finally, things are looking up for us. If we didn't go to court and get a ruling...I would have needed to move in with a relative. Yes, we all know how that feels. At thi ... Read on »
finally... by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Finally, I got Social Security Disability. It only took a little over two years!! This will save my family home. I have been praying so much. Also, asking prayers from a ... Read on »
Up In The AIR!!! by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Right now, I am awake, while everyone in this house is sleeping. I am having the weirdest bleed pattern ever. Generally for years I didn't have the menstral cycle at all. ... Read on »
How it Affected My Child by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus When Brittany was younger, there were times where should would be waiting in front of the house b/c she forgot her key, but basically it meant that I probably was in a hospi ... Read on »
Happy New Year! by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Happy New Year!!! I know it has been a long time since I have blogged. I have been crazy busy with all of my doctor appointments and my continued battle with social securi ... Read on »
home is where the heart is... by Lupus Nephritis .. Patient Expert 1 Comment Posted in: Blog Posts in Lupus Home is where the heart is...until you run out of money. We are facing foreclosure on our home that we have had for almost 10 years. I was very upset. We can sell it, but ... Read on »
just another day... by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus Just another Monday...isn't there a song with that phrase as a chorus? I have a full week ahead of me, also the fact that taxes are due Wednesday. I need to file for an ex ... Read on »
situations by Lupus Nephritis .. Patient Expert Posted in: Blog Posts in Lupus I had a big evening where I was helping an organization with a dinner. Last week I was able to help with a wedding and I was fine. It was very different this time. I didn ... Read on »