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Fibro What? The other F word by Carla U. Patient Expert

During and between the 3 lupus flares I’ve had, one constant has been my companion- fibromyalgia. After the big scares have all passed- my kidneys are no longer failing ... Read on »

Fear Factor: Vitamin D by Carla U. Patient Expert

How interesting, and yet not surprising that we have a vitamin D deficiency in a culture where people spend their entire day indoors or in a car, train, mall, classroom, or bu ... Read on »

how much too reveal by Carla U. Patient Expert

Some folks are very open about their illnesses. others refuse to discuss it. i can understand both sides of this. at first, i talked openly about having lupus. but i had so ma ... Read on »

just say no to... vaccines. by Carla U. Patient Expert

when i tell my friends i refuse to get any more vaccines, they think i’m art of the lunatic fringe when i say that these things were grown in monkey tissues and cancer t ... Read on »

All kinds of treatments out there for lupus by Carla U. Patient Expert

i thought i'd share this, which i found ondailystrength.org.this is a list of all the various treatments peoplewith lupus have tried. includes number of people whotried it and ... Read on »

results of lupus survey by Carla U. Patient Expert

I set up a survey about lupus on surveymonkey.com, with a limit of 100 respondents.Well, the results are in.First of all, I sent the results to my husband. Itreally hit home w ... Read on »

So what's on Your Mind (Sorry i asked) by Carla U. Patient Expert

I got an MRI a few months ago. The rheumatologist really didn't say anything about the MRI results except "you have sinusistis" (duh, i have been blowing my nose for 15 years, ... Read on »

Lupus envy by Carla U. Patient Expert

i've had people say all sorts of insulting things to me regarding my illness. "i wish had 6 weeks ot just lay in the bed and read."if your life is so F***ed up that you wish y ... Read on »

My disease is worse than your disease by Carla U. Patient Expert

People around you, when you have a chronic illness, don't understand when you can't go to social outings 3 times a week because it's too tiring, or other things you have to op ... Read on »

Hiding from the sun. Or not! by Carla U. Patient Expert

I found this article on sunscreens; many of them contain very hazardous chemicals that can harm us. A lot ofbig name brands are the culprits, like Coppertone, Avon, Walgreen's ... Read on »

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