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The next time I want to walk 15 blocks, Someone please remind me I have Lupus!

Posted Jun 30 2010 12:00am

Good Afternoon!

The title of this blog says it all! The next time I want to be ambitious and walk 15 blocks in New York City, after a long and fun-filled day (even with the help of a starbucks skinny caramel latte), Someone, please remind me I have LUPUS! I love to be ambitious and take on challenges and after the LFA awards dinner I was feeling great buzzing off a social high from meeting such wonderful and inspiring individuals, but lets be honest, 15 blocks.. I pushed it... and today, as I had predicted last night (using my lovely Crystal ball), I am achey, extremely stiff and inflamed, and altogether EXHAUSTED (a semi-flaring day for sure, and for those of you who don't know what a FLARE is it stands for Feeling Lousy And Really Exhausted)! Luckily, I don't have much to do today, other than rest and look up all the amazing organizations and Lupus awareness events coming up in the next few months! I'd also like to introduce you all to my new friend Tiffany and her newly founded non-profit organization that is just getting it's feet off the
ground, "Friends Against Lupus!" If you are interested, I encourage you to check out her Facebook page! She is a young up and coming leader in the Lupus Community and I plan on becoming very involved with her organization as well as the LFA and the Lupus Alliance of NY! I'm keeping today's post short & sweet since I am in need of my 3rd cup of coffee and my hands are too stiff to continue without further adieu,I'll leave you with our daily Jolt-of-Java, brought to you by a dear friend on the "Living with Lupus" support page:

Jolt-of- Java: Four Things You Cannot Recover:
1. The stone after the throw.
2. The word after it's said.
3. The occasion after it's missed.
4. The time after its gone.
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