These days it's often difficult to stay updated when you're always on the go, which for me means endless doctors appointments, Lupus support group meetings, as well as Lupus awareness meetings galore!
Behold! That's when thee online social networks come in to save the day! Twitter and Facebook always help keep me updated on the newest Lupus updates, as well as with friends and family. It just so happens one particular day while I was heading home from seeing my Rheumatologist; I received a tweet from @LupusNY about a new way to support Lupus research.
One sister with a confirmed diagnosis of lupus and one sister that does not have lupus.
If there is more than one sister without lupus, all may participate.
Criteria for sister with lupus: Confirmed diagnosis of Lupus (SLE), with disease onset between the ages of 10 and 35 years
Criteria for sister(s) without lupus: Currently between the ages of 10 and 35
Each sister, both affected and unaffected, is asked to
take part in telephone interview with a research nurse
The blood sample may be collected at The Feinstein Institute for Medical Research in Manhasset, NY; at a laboratory near your home; or by your personal physician. To Participate in this amazing Lupus Research Sister Study please contact SisSLE Research Study The Feinstein Institute for Medical Research North Shore-LIJ Health System 350 Community Drive Manhasset, NY 11030.
This study of lupus sisters will provide important insights into the lupus disease process and will hopefully lead to improved treatments and diagnosis! Such a simple step can save a future life, won't you help?